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Coyne: No, seats on the US Institute of Medicine advisory commitees are not for sale, despite what the Dutch Parliament was told

Discussion in 'PsychoSocial ME/CFS News' started by Cheshire, Nov 16, 2017.

  1. Cheshire

    Cheshire Moderator Staff Member

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    by James C Coyne November 16, 2017

    https://www.coyneoftherealm.com/blo...le-despite-what-the-dutch-parliament-was-told
     
  2. Solstice

    Solstice Senior Member (Voting Rights)

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    Getting harder and harder to weasle out of rejecting CBT and GET as an institution. I hope the relevant charities etc. keep the pressure on.
     
  3. FreeSarah

    FreeSarah Senior Member (Voting Rights)

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    van Gool:

    It's like these guys are auditioning to be Bond villains. One thing's for sure: Chauvinism is alive and thriving in the world of medicine.
     
  4. Solstice

    Solstice Senior Member (Voting Rights)

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    They backed the wrong horse and now they're doing everything in their power to prevent people from noticing the harm that's been caused.
     
  5. FreeSarah

    FreeSarah Senior Member (Voting Rights)

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    Yes. As Coyne says: "Patients and their carers and advocates would do well to be vigilant for the next move from the Dutch Health Council."
     
  6. Esther12

    Esther12 Senior Member (Voting Rights)

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    Has van Gool ever apologised for this? Or commented on it in any way?
     
    Skycloud and Luther Blissett like this.
  7. MErmaid

    MErmaid Guest

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    A great find from Coyne!
     
    Luther Blissett and Wonko like this.
  8. Barry

    Barry Senior Member (Voting Rights)

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    Just realised, Lou Corsius has not joined us here. Has he been invited @TiredSam.
     
    Hutan, Esther12 and Luther Blissett like this.
  9. TiredSam

    TiredSam Moderator Staff Member

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    Not by me. I can't PM anyone on PR. @Andy ?
     
    Esther12, Wonko, Barry and 1 other person like this.
  10. Andy

    Andy Committee Member & Outreach

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    Done.
     
    Esther12, Wonko, Barry and 4 others like this.
  11. MEMarge

    MEMarge Senior Member (Voting Rights)

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    Oh no Tired Sam, are you still banned?

    They didn't like my comment likening TOP presidential style to that of Trump, but just deleted my post, rather than me.
     
  12. TiredSam

    TiredSam Moderator Staff Member

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    Not banned, but unable to post, edit or PM, so I might as well be.
     
  13. Lou Corsius

    Lou Corsius Established Member (Voting Rights)

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    https://www.coyneoftherealm.com/blo...le-despite-what-the-dutch-parliament-was-told
    Following a citizens initiative the Dutch Parliament asked the Dutch Health Council https://www.gezondheidsraad.nl/en in 2015 to advise on ME. In March 2016 an advisory committee ME/CFS (ME/CFS was not the request!) was installed counting 10 members. 4 of them are explicitely MUS scientists. One of them is co-author of the editorial that hailed the PACE trial in the Lancet in 2011. http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(11)60172-4/abstract In June 2016 the president informed members of Parliament about the process until then. In that meeting he made remarks about the IOM report. It was needed according to the president to add quality to the report considering new (Dutch) research was soon to be published. When asked to explain what the IOM is, he misinformed the MP's. Why did he do that? At least it is hard to believe that he is not correctly informed about the IOM himself, because according to the Council's website they are linked to each other. A specific research group in The Netherlands is very influential on the subject of ME and CFS. They are working closely together with the PACE-athors and with Esther Crawley on FITNET. It is this group that claim ME and CFS are based on false ilness beliefs and CBT/GET leads to improvement or even recovery. Very soon now, the Health Council will present their findings. To put it carefully, we have our doubts about that advice.
    When I met Prof Coyne some weeks ago during the screening of Unrest in Amsterdam, he asked who this person was discrediting the IOM/NAM. I informed him about this case.
     
    MEMarge, Chezboo, Solstice and 16 others like this.
  14. Esther12

    Esther12 Senior Member (Voting Rights)

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    Thanks Lou, and welcome to the forum.
     
    Sean, MEMarge, Cheshire and 3 others like this.

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