Covid-19 vaccination experiences

Mij said:
I found this
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Apart from his temporary confusion (which I didn't witness because I was asleep myself) when waking up yesterday, he has been his totally normal self, and there wasn't a recurrence today. He's able to do his favourite hobby (painting), hold conversations, read, help with the cooking and go for a walk.

Mithriel said:
I discovered recently that there is a name for this. I had just assumed it was something everyone experienced most of the time

https://www.healthline.com/health/sleep/sleep-drunkenness

Awful name. It is also called confusional arousal
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Having read the healthline link, the description suggests a problem that is far more serious than what happened to my husband yesterday - his issue was very short-lived and I wouldn't have mentioned it under normal circumstances. It was only of note because of the possible vaccine connection and the fact this was the first time it had ever happened to him. I'm just wondering if he got disturbed in his sleep by something and it woke him up at a different point in his sleep cycle than is usual for him. But we'll never know.
 
Arnie Pye said:
I'm posting about my husband, not me. He had his second injection (AZ) yesterday.

Have you ever woken up and in the first few minutes felt very confused, had no idea what day it is or what time of day or night it is or what the date is? I get this often. I've even, on rare occasions, been unable to say what season it is for a brief period after I've woken up. Usually, after a short time I can gather my wits and work out at least some of the information I'm missing about day/date/time/season.

Today my husband woke up and had this problem I've just described. And he claims this is the first time it has ever happened to him. Whether it is simply a coincidence and has nothing to do with his injection yesterday, I can't say. But I just thought I'd pass it on. It clearly made a big impression on my husband - he commented on it several times throughout the day and said how unpleasant he found the experience.
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Yes but not just on waking up, it's happening to me more these days. I've seen people call that jamais vu and it fits pretty well. It especially happens if I'm doing something that requires multiple steps, sometimes I finish one step and am completely puzzled as to what I'm doing, even if the steps are just cooking a simple breakfast. It takes a few seconds to work it back but it's a few seconds of total confusion that really don't feel good.

It seems kinda rare but I've seen some reports of this in ME patients or brain fog in general.
 
rvallee said:
Yes but not just on waking up, it's happening to me more these days. I've seen people call that jamais vu and it fits pretty well. It especially happens if I'm doing something that requires multiple steps, sometimes I finish one step and am completely puzzled as to what I'm doing, even if the steps are just cooking a simple breakfast. It takes a few seconds to work it back but it's a few seconds of total confusion that really don't feel good.

It seems kinda rare but I've seen some reports of this in ME patients or brain fog in general.
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This sounds very like part of my own experience of what I call "brain fog", although I am aware that brain fog is not necessarily the same condition in everyone. This afternoon, for example, I had received an Amazon parcel. My usual practice is to cut out my name and address from the cardboard packaging, recycle the rest of the cardboard, and shred my name and address. I walked across the kitchen (which is not big), and by the time I had crossed the floor I had forgotten what I was doing. I had to turn around to look at where I'd come from to remind myself I was getting the scissors. This is something that frustrates me a lot. Life is just so much less "smooth" than it used to be because my short-term memory is so erratic.
 
Just an update on my vaccine experience - I posted here a while ago not sure if I should get it or not. I send the ME Ass letter to my GP. Had a text from him the next day saying he'd added me to group 6. Another text two days later telling me I could book my vaccine. I had Astra Zenica. The jab was in the morning, the rest of the day I was fine then in the evening I starting feeling chilled and got a bad headache. Woke up in the night with terrible headache and nausea, felt pretty awful, like a bad flu. By the morning though the worst had passed. I was tired that day but by the next day pretty much back to normal (ME normal). That was about a month ago I think. I was pleasantly surprised as I was fully expecting a week or two of side effects. Nice to be pleasantly surprised by symptoms for once!
 
Arnie Pye said:
This sounds very like part of my own experience of what I call "brain fog", although I am aware that brain fog is not necessarily the same condition in everyone. This afternoon, for example, I had received an Amazon parcel. My usual practice is to cut out my name and address from the cardboard packaging, recycle the rest of the cardboard, and shred my name and address. I walked across the kitchen (which is not big), and by the time I had crossed the floor I had forgotten what I was doing. I had to turn around to look at where I'd come from to remind myself I was getting the scissors. This is something that frustrates me a lot. Life is just so much less "smooth" than it used to be because my short-term memory is so erratic.
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Eh, yeah pretty much. Happened to me last night and I had to laugh at the fact that I need to put myself reminders for things I need to do in 5 seconds just because I have to do another thing before, even if that thing also takes about 5 seconds.

Ugh.
 
rvallee said:
Eh, yeah pretty much. Happened to me last night and I had to laugh at the fact that I need to put myself reminders for things I need to do in 5 seconds just because I have to do another thing before, even if that thing also takes about 5 seconds.
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this. :laugh:
Wonko said:
So the thought to make a reminder, to remind you do do something, doesn't make you forget what it was you wanted to be reminded of?
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:rofl:
 
So I’m wondering what went wrong in my case.
Eight weeks past the second shot and I’m not only not back to prior, I’ve been going downhill instead of up. Perhaps it knocked me off of a metaphorical health tight rope which I could not see but was in fact suspended on.
 
Keela Too said:
I had Pfizer on Wednesday (17th March) and had a bit of tenderness at the vaccination site, and was a bit sleepy that afternoon. Since then I’ve pretty much stayed around my normal. Perhaps slightly more energy over the weekend, but thatmight just have been the beautiful Spring weather we had here! :D
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Going for my 2nd Pfizer today. Hoping the “slightly more energy” thing might happen again. :emoji_fingers_crossed::emoji_fingers_crossed:
Will report back in a day or three.
 
Sisyphus said:
So I’m wondering what went wrong in my case.
Eight weeks past the second shot and I’m not only not back to prior, I’ve been going downhill instead of up. Perhaps it knocked me off of a metaphorical health tight rope which I could not see but was in fact suspended on.
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That’s really rough.
It’s such a risk we take when our health is so vulnerable to change.
Hoping things swing up again for you soon. xx
 
Sisyphus said:
So I’m wondering what went wrong in my case.
Eight weeks past the second shot and I’m not only not back to prior, I’ve been going downhill instead of up. Perhaps it knocked me off of a metaphorical health tight rope which I could not see but was in fact suspended on.
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Sorry to hear this Sisyphus, and from others in the forum who’ve had bad post-jab reactions. I started feeling more or less back to baseline after 7 or 8 weeks, except still have increased heart palpitations, that started a few hours after getting the vaccine, and still haven’t resolved. So I have an increased awareness of my resting heart rate, and it feels faster, not racing but maybe a few bpm faster, and I’ve also had more frequent irregular and skipped heartbeats. My muscles also felt ‘strange and different’ as another poster commented, not more painful, perhaps less so, but, maybe less sensation or subjectively ‘felt’ weaker, but not actually any change in muscle strength.

I got the AZ jab, how about you? My next one is booked for Friday, I’m not quite sure if the palpitations is something worth mentioning to my doctor or not - probably all tests would be normal, or sufficient reason to skip the second jab, I expect I’ll just go ahead as planned. Usually second AZ jab is better tolerated. Initial data from ‘mix and match’ study showed increased incidence of (minor) side effects associated with immune activation where a different first and second vaccine were used, in healthy volunteers aged over 50 years old.
 
As I have followed this thread I have not noticed many 'improvement' cases following the vaccine. The Healthrising poll suggests 23%, 184 improvers with ME/CFS/FM as of today. At 23% I would have expected to hear more reports of improvements.
I have had both Pfizer shots now (second about 3 weeks ago). Two weeks after first I had a noticeable improvement, less improvement after the second. I estimate (according to MEA ratings) in January I was 55% and now 30%. Over the past 10 years I have followed a fluctuating trend and I usually get a bit of a boost in spring/summer but never this much.
 
hinterland said:
Sorry to hear this Sisyphus, and from others in the forum who’ve had bad post-jab reactions. I started feeling more or less back to baseline after 7 or 8 weeks, except still have increased heart palpitations, that started a few hours after getting the vaccine, and still haven’t resolved. So I have an increased awareness of my resting heart rate, and it feels faster, not racing but maybe a few bpm faster, and I’ve also had more frequent irregular and skipped heartbeats. My muscles also felt ‘strange and different’ as another poster commented, not more painful, perhaps less so, but, maybe less sensation or subjectively ‘felt’ weaker, but not actually any change in muscle strength.

I got the AZ jab, how about you? My next one is booked for Friday, I’m not quite sure if the palpitations is something worth mentioning to my doctor or not - probably all tests would be normal, or sufficient reason to skip the second jab, I expect I’ll just go ahead as planned. Usually second AZ jab is better tolerated. Initial data from ‘mix and match’ study showed increased incidence of (minor) side effects associated with immune activation where a different first and second vaccine were used, in healthy volunteers aged over 50 years old.
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I've rescheduled for the week after next, feeling too unwell with viral symptoms and headache this week. It's easy enough to do that on the accurx booking link in the text I got, but I think you need to give >24 hours notice so I had to decide today. Hopefully better luck with the new appointment date.
 
I had my 2nd AZ jab yesterday.

Had zero side effects after the first which really surprised me. Yesterday about 10 minutes after the jab the top of my arm felt a little sore but the soreness disappeared within about 30 minutes.

I was more headachy than usual yesterday evening but I was upright a lot longer than I had intended and it could just as easily have been the cause.

I am pretty wiped out at the moment but it's been a very busy and rather stressful few weeks. Work being done in my house though the guys are really considerate & understanding but there's still a lot if moving stuff around and hunting for stuff that's been displaced.

Plus my beloved dog has been ill and needed an emergency trip to the vets at 3am last week. Lots of disruption to the routines that keep my life easier.

So, in all honesty, I can't say I'm noticing any significant side effect that isn't more likely to be caused by something else.
 
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