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Coronavirus: Advice from ME organisations

Discussion in 'Epidemics (including Covid-19, not Long Covid)' started by Eagles, Feb 11, 2020.

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Page 9 of 12
  1. Sean

    Sean Moderator Staff Member

    Messages:
    7,198
    Location:
    Australia
    One possibly useful tip I have not seen anywhere is that picking the timing of shopping (in a general supermarket at least) can greatly reduce the numbers of people there, and hence presumably your exposure risk (though surfaces will probably still be quite risky, especially late at night after a day's worth of customers have been through).

    I often go late in the night or at the crack of dawn anyway, in the last/first hour of business, because there are just a lot less people there, and a lot less waiting time in queues.

    Also, if you go during sunlight hours and need a trolley, see if you can find one that is sitting in the sun in the car park. Direct sunlight is a powerful disinfectant. (No guarantees though. :whistle: )
     
    Sean, Mar 15, 2020
    #161
    Wits_End, JaneL, 2kidswithME and 2 others like this.
  2. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

    Messages:
    13,495
    Location:
    London, UK
    A lot of staple foods are fortified with vitamins. I very much doubt there is any need. I used to look after many people with arthritis who had pretty limited diets and vitamin deficiency was not an issue. I think it is much more sensible to eat a bit of fruit and veg now and again to be honest.
     
    Jonathan Edwards, Mar 15, 2020
    #162
    ahimsa, TrixieStix, ladycatlover and 6 others like this.
  3. Denise

    Denise Senior Member (Voting Rights)

    Messages:
    471
    Merged thread
    Even though this was developed for people in Ireland, there's lots that is applicable to caregivers everywhere.
    Creating a Backup Plan:

    Covid-19 and Family Carers
    ....
    It is vital that family carers develop an emergency/backup plan which can be used if a family carer cannot provide care in the home. We have collated some information here which may be useful for family carers in planning for such an event. ....
    ​
    https://www.carealliance.ie/Covid19

    [Thanks to everyone who worked on this!]
     
    Last edited by a moderator: Mar 15, 2020
    Denise, Mar 15, 2020
    #163
    Hell..hath..no..fury..., Amw66, ladycatlover and 8 others like this.
  4. TiredSam

    TiredSam Committee Member

    Messages:
    10,496
    Location:
    Germany
    Before I had ME I used to go to the supermarket at lunch-time. No right-thinking German goes to the supermarket at lunchtime, so I usually had the place to myself.
     
    TiredSam, Mar 15, 2020
    #164
    Woolie, Sean, shak8 and 9 others like this.
  5. Adrian

    Adrian Administrator Staff Member

    Messages:
    6,486
    Location:
    UK
    The problem comes if everyone is trying to shop when no one is shopping and going at quiet times. Then perhaps peak times will be quiet.
     
    Adrian, Mar 15, 2020
    #165
    JaneL, ladycatlover, Invisible Woman and 2 others like this.
  6. Trish

    Trish Moderator Staff Member

    Messages:
    52,286
    Location:
    UK
    I just went online to order our next supermarket delivery from Tesco (UK). We can usually get a delivery time slot in the next day or two. On their website there were no slots at all available for the next 3 weeks and no booking slots available after that yet. Luckily my daughter decided to try their App on her phone, and got a slot for one week away.

    And I'm glad we have been stocking up over the last few weeks, so we have enough food for about 3 weeks anyway. Our plan was to do a normal sized shop for delivery from a local supermarket from now on about once a week to keep us always a couple of weeks ahead. That looks like it might prove difficult. Oh well there's always Amazon.
     
    Trish, Mar 15, 2020
    #166
    Hell..hath..no..fury..., shak8, JaneL and 10 others like this.
  7. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,584
    Location:
    UK
    snap. I just tried to do the same. And there were (among a lot of things) no loo rolls available.
    Also the local shop only had a delivery yesterday and many things were already sold out. madness.
     
    Sly Saint, Mar 15, 2020
    #167
    Hell..hath..no..fury..., JaneL, MeSci and 5 others like this.
  8. boolybooly

    boolybooly Senior Member (Voting Rights)

    Messages:
    514
    boolybooly, Mar 15, 2020
    #168
  9. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

    Messages:
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    Location:
    London, UK
    I think that is a bit misleading These are just drugs being investigated. Nobody nows if they have any value at all. They are not for clinical use.
     
    Jonathan Edwards, Mar 15, 2020
    #169
    Michelle, ahimsa, James Morris-Lent and 5 others like this.
  10. JemPD

    JemPD Senior Member (Voting Rights)

    Messages:
    3,973
    I sorry if this isn't in the correct thread not sure where else to put it, but I hope someone is pointing out to the DWP that they need to be looking at stopping reassessments for people self isolating. Home visits from assessors & going to an assessment centre both puts vulnerable people at risk. No doubt they'd be less than unhappy about that. I appreciate they need to assess new claimants somehow but how are they going to avoid making people risk their lives in order to get their money?
     
    JemPD, Mar 15, 2020
    #170
    Hell..hath..no..fury..., Sean, JaneL and 4 others like this.
  11. boolybooly

    boolybooly Senior Member (Voting Rights)

    Messages:
    514
    Well there must be something in it, ribavirin and interferon beta have been "under investigation" for coronavirus since 2013 and the ECDC say they have been initiated against SARS-COV-2.

    https://www.ncbi.nlm.nih.gov/pubmed/23594967

    You would have thought they would have an idea by now. In vitro is promising and they would presumably not be trying them if there were contraindications or signs of uselessness in vivo.

    Lets hope they come up with some helpful advice on a relevant timescale.
     
    boolybooly, Mar 15, 2020
    #171
    Hell..hath..no..fury..., JaneL, Invisible Woman and 1 other person like this.
  12. lunarainbows

    lunarainbows Senior Member (Voting Rights)

    Messages:
    2,820
    lunarainbows, Mar 15, 2020
    #172
    Michelle, Woolie, JaneL and 4 others like this.
  13. lunarainbows

    lunarainbows Senior Member (Voting Rights)

    Messages:
    2,820
    I have seen that in China and Italy, drugs are being tried on a compassionate basis and within trials as well.
    Will this happen in the UK, at least until the trials are finished? (I fear the answer may be no.)
     
    lunarainbows, Mar 15, 2020
    #173
    Woolie, JaneL, Invisible Woman and 3 others like this.
  14. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    People go on flogging a dead horse in science for decades.
     
    Jonathan Edwards, Mar 15, 2020
    #174
    ladycatlover, TrixieStix, shak8 and 5 others like this.
  15. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    One of the leading authorities on IL-6 and tocilizumab in the UK had herself treated with it for a condition off label and she very nearly died, I think from acute respiratory distress.

    It might work but it might make things much worse. We need trials other than off label usage.
     
    Jonathan Edwards, Mar 15, 2020
    #175
    Michelle, Woolie, hinterland and 12 others like this.
  16. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    Properly controlled trials should be set up but I suspect that bureaucracy will get in the way. The real problem is that the service is so flat on its back that nobody will have time to even think of setting up trials. If the policy had been to lock down and slow things down realistically then these things might have got set up.
     
    Jonathan Edwards, Mar 15, 2020
    #176
    ladycatlover, Invisible Woman, FMMM1 and 8 others like this.
  17. boolybooly

    boolybooly Senior Member (Voting Rights)

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    boolybooly, Mar 15, 2020
    #177
    JaneL and lunarainbows like this.
  18. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Sly Saint, Mar 16, 2020
    #178
    Keela Too, JaneL, MSEsperanza and 1 other person like this.
  19. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

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    2,857
    Location:
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    Dr. Shepherd from the ME Association:
    @Tom Kindlon
     
    Last edited: Mar 16, 2020
    MSEsperanza, Mar 16, 2020
    #179
    MeSci, Hutan, Michelle and 4 others like this.
  20. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    3,780
    Location:
    UK
    I'm a bit confused about how much risk there is in just walking about outside and passing other pedestrians on the pavement. I've gone into social isolation but am attempting to stop myself going nuts by at least getting out of my flat.

    But am I putting myself at risk?
     
    Sasha, Mar 16, 2020
    #180
    MeSci, JaneL, Invisible Woman and 2 others like this.
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