Barry
Senior Member (Voting Rights)
Given the glaring flaws in this measuring instrument, and the fact out of range readings may be misconstrued as valid in-range readings, I would love to see this measuring instrument properly and rigorously reassessed. If it were something you bought in a high street shop, it would be deemed not fit for purpose, and I'm sure fall foul of consumer protection laws.The two primary outcome measures 15,16 are valid and reliable and have been used in previous trials. 4–7
15 Chalder T, Berelowitz G, Hirsch S, Pawlikowska T, Wallace P, Wessely S. Development of a fatigue scale. J Psychosom Res 1993; 37: 147–53.
If the limitations of this measurement scale were properly and formally exposed, and its use where no careful account were taken of those limitations, then that alone would crucify PACE, as well as those who invented it ... oh yes, they were also PACE authors.
Is there a way to get an independent assessment of medical measuring instruments, by bodies with the clout to say yay or nay?