Thanks for the replies.
Your work on all this looks important. Are you planning to publish anything soon about your plans for a package of tracking and outcome measures for ME/CFS? This work looks really useful, especially as you will be testing it on patients along with biological testing.
Thank you, we have made a more concerted effort in the space of developing tools needed to improve research on ME/CFS. I think FUNCAP is an example of how researchers are needing these tools, that has spread like wild fire, many researchers are using it already and it's not yet officially published.
Publish an article on our plans? We could but I hadn't put plans in to do that. We are planning on a systematic review of all blood biomarkers that have been found to be different in MECFS vs HC. The purpose was to make sure we test them.
But maybe a paper on devices and surveys for ME would be useful. It has taken us a lot of time to identify the ones we think are the best.