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Checking our blind spots: current status of research evidence summaries in ME/CFS (2018) Davenport et al

Discussion in 'BioMedical ME/CFS Research' started by mango, Jul 18, 2018.

  1. mango

    mango Senior Member (Voting Rights)

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    Checking our blind spots: current status of research evidence summaries in ME/CFS

    Todd E Davenport, Staci R Stevens, J Mark VanNess, Jared Stevens, Christopher R Snell

    The evidence-based practice (EBP) model hierarchically organises scientific information by level, from lowly case studies to lofty systematic reviews and clinical trials. Clinical trials best influence recommendations because they putatively have the greatest internal validity.1 This assumption is based on sound research ethics, such as scientific competence and good faith actors, as well as observed differences in outcomes. An EBP blind spot emerges when fundamental assumptions are unmet. Based on findings of a 2018 PEDro evidence summary in BJSM 2 and elsewhere,3 it now seems clear that scientific research in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) resides in a blind spot.

    ME/CFS—a multisystem condition
    ME/CFS is estimated to affect 836 000 to 2.5 million people in the USA.4 Ninety per cent of cases are thought to go undiagnosed,4 suggesting that people with ME/CFS are substantially undercounted, underdiagnosed and undertreated. Substantial literature exists to support that ME/CFS is a multisystem condition that appears associated with a combination of genetic, cellular and systemic metabolic deficits in …

    https://bjsm.bmj.com/content/early/2018/07/17/bjsports-2018-099553

    Behind paywall
     
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  2. JaimeS

    JaimeS Senior Member (Voting Rights)

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    It's a one-pager. Some good lines:

    Mostly combating the idea of the Cohrane review being the final word, unless I miss my guess.

    A final call for evidence based medicine also involving patient perspective.

    If quoting to this limited degree is unacceptable, lmk mods, and I will remove.
     
  3. Milo

    Milo Senior Member (Voting Rights)

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    Bravo! thank you Todd E Davenport, Staci R Stevens, J Mark VanNess, Jared Stevens, Christopher R Snell. You are true heroes.
     
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  4. NelliePledge

    NelliePledge Moderator Staff Member

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    apologies for ignorant question is there some significance of this being an editorial?
     
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  5. Guest 102

    Guest 102 Guest

    It’s an excellent short paper, my science writer friend George Lumison (who has himself written eloquently on PACE several times) just sent me the pdf though I don’t have permission to share. Thank you to the authors for articulating the blindspot in ME research so well and concisely.
     
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  6. Sasha

    Sasha Senior Member (Voting Rights)

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    Pleased to see this. We need academics and clinicians speaking out in their journals.
     
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  7. Tijs

    Tijs Established Member

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  8. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  9. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  10. JaimeS

    JaimeS Senior Member (Voting Rights)

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    Does not get enough credit even tho I see her name EVERYWHERE, so signal-boost.
     
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  11. Skycloud

    Skycloud Senior Member (Voting Rights)

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    Thank you and welcome to the forum!
     
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  12. Tijs

    Tijs Established Member

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    Thanks for the welcome, @Skycloud !
     
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