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Chapter on Chronic Fatigue, Sharpe, in Science and Practice of Cognitive Behaviour Therapy

Discussion in 'PsychoSocial ME/CFS Research' started by Esther12, Jul 3, 2020.

  1. Esther12

    Esther12 Senior Member (Voting Rights)

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    I'd highlighted this part of the transcript in another thread... have forgotten the rest of that video now:

     
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  2. dave30th

    dave30th Senior Member (Voting Rights)

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    Well, we see how this works with the "health anxiety" behavior. They are sure when they set out to do a trial that it will definitely provide further evidence for their interventions. And when it doesn't, as in the CBT for dissociative seizures trial and every other trial, it doesn't matter because you just say it did and no one seems to care if the statements even match the study findings.
     
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  3. DigitalDrifter

    DigitalDrifter Senior Member (Voting Rights)

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    This comment could fit right in the "Why do people believe in psychosomatic explanations" thread. Sceptics often say "We're not saying your symptoms are fake by saying it's psychosomatic", but that's usually just gaslighting in my experience (including of being sectioned and told by staff that I was in no pain).
     
    Last edited: Jul 4, 2020
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  4. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Treating chronic fatigue syndrome
    https://www.neuroscience.ox.ac.uk/how-we-are-making-a-difference/treating-chronic-fatigue-syndrome

    has no one told them?

    Jul 3, 2017, the CDC's Chronic Fatigue Syndrome page has been changed to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS); graded exercise therapy (GET) and cognitive behavioral therapy (CBT) recommendations have been removed.[4][5]

    • US NIH Report Calls for UK Definition of ME/CFS to be Scrapped - The Argus Report By: Penny Swift.
    Excerpt
    The United States National Institutes of Health (NIH) has issued a draft report that highlights the dire need for scientific research that will help find a cure for the millions of people suffering from myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) worldwide. The report also highlights the fact that the decades-old UK Royal Society of Medicine’s Oxford criteria for ME/CFS are severely “flawed,” and that continuing to use these criteria may “cause harm.” Further, the NIH report says that the Royal Society definition should “be retired” and replaced with a single case definition agreed to by the ME/CFS community.[9]

    eta:
    Email: neuroscience@medsci.ox.ac.uk
     
  5. Mithriel

    Mithriel Senior Member (Voting Rights)

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    His definition of ME would have been more accurate if he had actually asked patients what symptoms they had. Dr Derek Pheby tried to get research money to look at what patients experienced but it was rejected because it was not necessary.

    The theory of patients being deconditioned was put forward without any research being done on whether this was true or not.
     
  6. Esther12

    Esther12 Senior Member (Voting Rights)

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    I'm sure they'd be deeply concerned about misleading patients!
     
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