Cambridgeshire Live article: Cambridge Dad living with ME becomes so exhausted he can't walk downstairs

That sounds about right to what’s been done to us as a world dystopia where our voice is now reworded. Hard to describe how everyday this rewording is and how impossible it makes living

As fir existing - well do we at all if when we describe ourselves we are reworded? And EVERYONE is encouraged to do this to us pretending it isn’t the most awful aggression’but if we’ve a different understanding in what we suffer we, the ill looking one , must have just explained it one so there ke with ten seconds expertise has reworded it for you ‘

 

It would be interesting to talk to some with illnesses like MS where their fatigue has been lumped in as if like ours to actually find out where/if there are similarities ie how crude this ‘it’s all fatigue’ is

in our case they’ve taken a whole illness and hand-waived it into a symptom we don’t even then get control of the meaning of so it was always nonsense having it in the name