I missed my bin collection last night, I am definitely foggy headed and not with it, possibly a bit stressed and emotionally labile due to a constantly recurring cycle of inflammation subsequent to my covid infection this time last year, which is still giving me weekly migraines and exacerbating PEM considerably but it strikes me that if a virus makes you ill and stress while suffering from a virus makes you iller that you have to relax and not stress. So I am trying not to worry about my bins.
I completely accept stress does matter in recovery from viral illness. Stress makes things worse, reducing stress helps. It does not help to deny the counterproductive affect of stress on viral illness.
The problem is a history of clinicians losing their way in psycho-sophistry, imagining models of conditioning and reinforcement which are not accurate, misapplying a purely psychological paradigm, ignoring the inflammatory basis of the immune response to viral infections and doubling down on stressors as a treatment for MECFS in a misguided attempt to break patients out of an illness which is not primarily psychological, which consequently doesnt work and makes people iller, because stress makes viral illness worse, because these people have viral illness not a psychological condition. Is that clear enough ?
The problem is not patients behaving badly, the problem is, like David Tuller was saying in a recent blog, clinicians adopting the wrong paradigm which doesnt work and is harmful.
The question is, are these Norwegians really going to be mislead by people like Vogt and do this all over again or can we communicate with them and intercede? It is possible there are still people out there trying to avoid paying for treatments, which encourages this kind of mistake. Is that a factor this time?
I think we should monitor and if necessary intervene and by we I especially mean recognised groups like ME Association, Action for ME and ME Action and any other ME organisations out there.
IMHO we do have to be vigilant and responsive where necessary, like the T cells of the human psyche, remembering past pathology and seeking out and deactivating pathogenic ideas where they recur.
We just need to relax while we are doing it and not get stressed or anything.
