Three Chord Monty
Senior Member (Voting Rights)
I'm not exactly sure this is the right subforum for this but it sure doesn't seem like it should go in the biomedical area. Based on a quick skim it seems like a sort of general wellness guide wrapped up in a sort of systems biology packaging, with something like CBT and/or NLP (lots of stuff about thinking positively, safe spaces, and so forth), and a good dollup of exercise thrown in for good measure. I came across this first:
"Using artificial intelligence to understand irritable bowel syndrome, chronic fatigue syndrome and fibromyalgia syndrome"
https://atlasofscience.org/using-ar...c-fatigue-syndrome-and-fibromyalgia-syndrome/
The body is proposed as an adaptive network, blah blah, it would sound okay, perhaps, but for the immediate invocation of 'functional disorders' and MUS. Not sure I read AI into this, but whatever. This paper is linked, which was published over a year ago:
A test of the adaptive network explanation of functional disorders using a machine learning analysis of symptoms
https://www.sciencedirect.com/science/article/pii/S0303264717302435?via=ihub
1751 patients with IBS, FMS, or CFS, custom-designed 61-item questionnaire...patients 'self-reported' their diagnosis. Then I took a look at the website mentioned (not linked) in the Atlas of Science article.
http://www.bodyreprogramming.org/default.aspx
It claims this is a course provided by the NHS, but I didn't see it anywhere on there. There are a couple of videos, and they claim they're working on this for a research project. Then there's this link to their pdf.
http://www.bodyreprogramming.org/PatientGuide.pdf
I don't see any indication that they're selling anything, but, this seems to involve the 'principles' of the 'course,' and, again, all I gave this was a brief skim. Not so much in here about ME/CFS, here it's more about IBS and Fibromyalgia as Central Sensitivity Syndromes.
"Sometimes when you overdo an activity –for example, too much walking– you feel exhausted the next day and the following days you don’t feel much better. If you notice a consistent deterioration in what you are able to do over a period of time then you are almost certainly over-doing things. If you are sure that you are not over-doing an activity, the deterioration may occur as a result of doing too little."
There's a lot of garbage in here I almost can't even bear to bring myself to quote. Pain medication bad, repurposed antidepressants good...for all the hifalutin verbiage on the Atlas of Science page--not that I trusted anything that started in so definitively with 'functional disorders,' but still--this seems a long way off from that, almost like something you'd see from a lifestyle guru like Andrew Weil or someone like that. 'Eat slowly, chew your food.' 'People with ME/CFS are nice people.' Yes, that's really in there. 'Speak to yourself using your name. Suppose your name is Susan.' 'Choose friends who make you happy.'
Really?
"Using artificial intelligence to understand irritable bowel syndrome, chronic fatigue syndrome and fibromyalgia syndrome"
https://atlasofscience.org/using-ar...c-fatigue-syndrome-and-fibromyalgia-syndrome/
The body is proposed as an adaptive network, blah blah, it would sound okay, perhaps, but for the immediate invocation of 'functional disorders' and MUS. Not sure I read AI into this, but whatever. This paper is linked, which was published over a year ago:
A test of the adaptive network explanation of functional disorders using a machine learning analysis of symptoms
https://www.sciencedirect.com/science/article/pii/S0303264717302435?via=ihub
1751 patients with IBS, FMS, or CFS, custom-designed 61-item questionnaire...patients 'self-reported' their diagnosis. Then I took a look at the website mentioned (not linked) in the Atlas of Science article.
http://www.bodyreprogramming.org/default.aspx
It claims this is a course provided by the NHS, but I didn't see it anywhere on there. There are a couple of videos, and they claim they're working on this for a research project. Then there's this link to their pdf.
http://www.bodyreprogramming.org/PatientGuide.pdf
I don't see any indication that they're selling anything, but, this seems to involve the 'principles' of the 'course,' and, again, all I gave this was a brief skim. Not so much in here about ME/CFS, here it's more about IBS and Fibromyalgia as Central Sensitivity Syndromes.
"Sometimes when you overdo an activity –for example, too much walking– you feel exhausted the next day and the following days you don’t feel much better. If you notice a consistent deterioration in what you are able to do over a period of time then you are almost certainly over-doing things. If you are sure that you are not over-doing an activity, the deterioration may occur as a result of doing too little."
There's a lot of garbage in here I almost can't even bear to bring myself to quote. Pain medication bad, repurposed antidepressants good...for all the hifalutin verbiage on the Atlas of Science page--not that I trusted anything that started in so definitively with 'functional disorders,' but still--this seems a long way off from that, almost like something you'd see from a lifestyle guru like Andrew Weil or someone like that. 'Eat slowly, chew your food.' 'People with ME/CFS are nice people.' Yes, that's really in there. 'Speak to yourself using your name. Suppose your name is Susan.' 'Choose friends who make you happy.'
Really?