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Bodily distress syndrome: Concerns about scientific credibility in research and implementation, 2018, O'Leary

Discussion in 'PsychoSocial ME/CFS Research' started by Andy, Dec 7, 2018.

  1. Andy

    Andy Committee Member & Outreach

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    Saw this linked to on Facebook.

    Full paper available at https://docs.wixstatic.com/ugd/23f4ba_ae3ffbf6ff614c669f1e6ad9420a2dc9.pdf

    I'm puzzled about where this was actually published. In the document linked to above it says
    On what appears to be the website of the Journal of Biological Physics and Chemistry the listed contents of that edition of their Journal only goes up to page 60, http://www.amsi.ge/jbpc/11818/jbpc11818.html

    I'm probably not understanding something but currently I remain confused.
     
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  2. Esther12

    Esther12 Senior Member (Voting Rights)

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  3. Andy

    Andy Committee Member & Outreach

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    Invisible Woman and Esther12 like this.
  4. BruceInOz

    BruceInOz Senior Member (Voting Rights)

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    I like this bit:

     
  5. BruceInOz

    BruceInOz Senior Member (Voting Rights)

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    And..
     
  6. BruceInOz

    BruceInOz Senior Member (Voting Rights)

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    In the conclusion:
    Nice to see the PACE trial used as an established example of poor science in the field of psychosomatic medicine.
     
  7. ScottTriGuy

    ScottTriGuy Senior Member (Voting Rights)

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    I think I just fell in love a little bit...

    I endeavor in my work to bring this shadowy area of medicine into public view. As an ethicist, I argue that women's health is routinely threatened by the principle in medical training that symptoms with mental causes predominantly affect women. I challenge our understanding of patient autonomy, informed consent, and doctor-patient truthfulness in cases where diagnosis of mental causes is made or considered. I suggest that medicine is sorely in need of “diagnostic ethics”, discourse that can articulate parameters for ethical management of diagnostic uncertainty.
    ...
    As a speaker and advisor, I work for practical improvements in policy related to diagnostic uncertainty. In this capacity I have spoken to or advised organizations concerned with women's health, chronic Lyme disease, rare disorders, myalgic encephalomyelitis/chronic fatigue syndrome, Ehlers-Danlos syndrome, periodic paralysis and others.

    From O'Leary's website: https://www.dianeoleary.com
     
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  8. Hutan

    Hutan Moderator Staff Member

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    There's a lot to like. Another example:

     
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  9. Trish

    Trish Moderator Staff Member

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    From what you are all saying this sounds like a good paper. I haven't any brain cells left to read it today, and have been trying to cheat my way to writing a news item about it for tomorrow's news in brief. I'll post it here in the hope that someone who has managed to read the paper will correct my bloomers:
     
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  10. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    "The scientific success of any hypothesis depends upon
    clarity about the question the hypothesis is proposed to
    answer. Similarly, the scientific success of any
    conceptual construct depends upon clarity about the
    purpose the construct is intended to serve, and proof that
    the construct does successfully accomplish that goal. On
    this very rudimentary scientific level, the construct of
    bodily distress syndrome is unsupported."

    "
    ME/CFS is an important cautionary tale. Regardless
    of which side we might favour in the ME/CFS debate, the
    very existence of the debate establishes that BDS carries
    significant medical risk."
     
    Last edited: Dec 8, 2018
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  11. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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