1. Guest, the 'News in Brief' for the week beginning 15th February 2021 is here.
    Dismiss Notice
  2. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

BMJ Editorial: Clarifying the roles of patients in research

Discussion in 'Health News and Research unrelated to ME/CFS' started by Indigophoton, Apr 12, 2018.

  1. Indigophoton

    Indigophoton Senior Member (Voting Rights)

    Messages:
    849
    Likes Received:
    9,774
    Location:
    UK
    https://www.bmj.com/content/361/bmj.k1463
     
    Indigophoton, Apr 12, 2018
    #1
    adambeyoncelowe, alktipping, hixxy and 5 others like this.
  2. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

    Messages:
    8,388
    Likes Received:
    88,522
    Twaddle again I would say.

    How about this bit:

    To avoid conflation of roles, all stakeholders should agree role descriptions at the beginning of a research study. This can help clarify expectation in large multidisciplinary teams for all research partners.

    Yes, it should be made clear that the role for this lot is to say 'thank you very much we feel so much better' and the role for that lot is to say that they feel much the same.

    Why on earth should roles for patients be defined in some anal fashion so that professors of health care whatsisname can feel magnanimous and erudite (ahem)?

    Patients with ME do a lot better than that.
     
    Jonathan Edwards, Apr 12, 2018
    #2
    adambeyoncelowe, EzzieD, Snow Leopard and 8 others like this.
  3. Sean

    Sean Senior Member (Voting Rights)

    Messages:
    2,939
    Likes Received:
    24,292
    Exactly.

    I reserve the right to be an uncooperative bastard patient. :p
     
    Sean, Apr 13, 2018
    #3
    EzzieD, Invisible Woman, Trish and 4 others like this.

Share This Page