Blog: Catherine Hale: New Year's Resolutions

[Andy]

It's 2019. I have one year of grant funding left to make a difference for people with Energy Limiting Chronic Illness (ELCI for short).

I'm daunted by the task. Scared I'm not up to the challenge.

By the end of 2019 I want #energyimpairment to be a thing that policy makers understand and take account of when designing strategies to improve the lives of disabled people, in the way they (ought to) do with sensory impairment, learning disability, mobility impairment and people with mental distress. I want people with ELCI to be considered and listened to.

http://www.catherinehale.net/2019/01/new-years-resolutions.html

 

[Cinders66]

I’m actually in the severe category and going to start using the term energy crisis. I’m not limited in energy , I have a borderline critical lack of it, if I’m exerted by a tiny thing I’m very ill, I can do and cope with virtually nothing. Whilst what CH is doing us probably useful in increasing the understanding of types of disability about, I think for severe ME we need to graphically express the debilitation.