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Blog: All The Time and None At All, Jenny Spotila

Discussion in 'General ME/CFS news' started by Indigophoton, Apr 25, 2018.

  1. Indigophoton

    Indigophoton Senior Member (Voting Rights)

    Yessica, Joh, Jan and 16 others like this.
  2. hellytheelephant

    hellytheelephant Senior Member (Voting Rights)

    I was diagnosed in 1993 as a young woman in my early 20's- I can't believe I am now 50 and there is still no treatment.
    Squeezy, Yessica, Joh and 16 others like this.
  3. Sunshine3

    Sunshine3 Senior Member (Voting Rights)

    Depressing, hope ME Action and Solve can change things....
    alktipping and Indigophoton like this.
  4. ahimsa

    ahimsa Senior Member (Voting Rights)

    Oregon, USA
    I hear ya, @hellytheelephant !

    Illness onset Jan. 1990 at age 29 for me. Then it was five years before I was even diagnosed.

    So, yes, it does seem unreal that there has been so little research and so little is known about ME/CFS.

    In fact, most of the time my medical care is like that old vaudeville joke:

    Patient: Doctor, it hurts when I do this!
    Doctor: Then don't do it!

    I guess I'm lucky because at least that's better than CBT/GET:

    Patient: Doctor, it hurts when I do this!
    Doctor: Are you sure? Maybe you just have a phobia? Try doing even MORE!
    Squeezy, Aroa, Yessica and 10 others like this.

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