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Blog: All The Time and None At All, Jenny Spotila

Discussion in 'General ME/CFS news' started by Indigophoton, Apr 25, 2018.

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  1. Indigophoton

    Indigophoton Senior Member (Voting Rights)

    Messages:
    849
    Location:
    UK
    http://occupyme.net/2018/04/25/all-the-time-and-none-at-all/
     
    Indigophoton, Apr 25, 2018
    #1
    Yessica, Joh, Jan and 16 others like this.
  2. hellytheelephant

    hellytheelephant Senior Member (Voting Rights)

    Messages:
    908
    I was diagnosed in 1993 as a young woman in my early 20's- I can't believe I am now 50 and there is still no treatment.
     
    hellytheelephant, Apr 25, 2018
    #2
    Squeezy, Yessica, Joh and 16 others like this.
  3. Sunshine3

    Sunshine3 Senior Member (Voting Rights)

    Messages:
    622
    Depressing, hope ME Action and Solve can change things....
     
    Sunshine3, Apr 25, 2018
    #3
    alktipping and Indigophoton like this.
  4. ahimsa

    ahimsa Senior Member (Voting Rights)

    Messages:
    2,634
    Location:
    Oregon, USA
    I hear ya, @hellytheelephant !

    Illness onset Jan. 1990 at age 29 for me. Then it was five years before I was even diagnosed.

    So, yes, it does seem unreal that there has been so little research and so little is known about ME/CFS.

    In fact, most of the time my medical care is like that old vaudeville joke:

    Patient: Doctor, it hurts when I do this!
    Doctor: Then don't do it!

    I guess I'm lucky because at least that's better than CBT/GET:

    Patient: Doctor, it hurts when I do this!
    Doctor: Are you sure? Maybe you just have a phobia? Try doing even MORE!
     
    ahimsa, Apr 26, 2018
    #4
    Squeezy, Aroa, Yessica and 10 others like this.

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