[Being planned] Rotary Action Group ME/CFS

OrganicChilli

Senior Member (Voting Rights)
RAG ME/CFS

Myalgic encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a severe debilitating illness that leads to a high degree of physical disability. Since the COVID-19 pandemic, the number of affected individuals has multiplied; in Germany, there are approximately 650,000 cases, and in Austria, the estimated number is up to 80,000. Around a quarter of those affected require care for years; they are unable to work or travel, are extremely sensitive to light and noise, sometimes unable to speak, often require artificial feeding, and lose all contact with the outside world. There are few specialized doctors and hardly any treatment options. Those affected and their families are often left entirely to their own devices, receiving support from the social welfare system only sporadically and after lengthy legal battles.

Michael Werba, past president of the Rotary Club of Mödling, south of Vienna, has set himself the goal of establishing a Rotary Action Group for ME/CFS Support. To found such a group, 50 supporters from at least five countries and three Rotary zones are needed who want to get involved in the fight against ME/CFS. Germany and Austria belong to two different zones. Non-Rotarians are also welcome as members. More than €95,000 has already been raised for ME/CFS research and aid through two District Grants and sponsorships.

Edit: Michael[at]werba.cc is his email if anyone is interested.
 
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