BACME's (British Association for CFS/ME) website has been down for ages, I'd thought, but now it's up again, and it's quite strange. Here it is: https://www.bacme.info/ The first weirdness is its huge, colourful main-page banner of lively, fully able people and mostly children jumping and playing in a park. This is their idea of patients? Are they nuts? There are other oddities, but here's another on their page of patient support-groups: https://www.bacme.info/patient-support-groups The full list of groups is this: The Association of Young People with ME (AYME) has now merged with Action for M.E. Action for M.E. - www.actionforme.org.uk The Sussex & Kent ME/CFS Society is a major regional charity which aims to inform, support, and represent people affected by CFS/ME in the South East of England. Sussex & Kent ME/CFS Society - www.measussex.org.uk reMEmber was formed in 1999 to secure good medical services for people who have CFS/ME. reMEmber - www.remembercfs.org.uk/cfs.htm So it's AYME, which no longer exists; AfME, the only ME/CFS UK charity, apart from AYME, not to come out clearly against PACE; a single local group, whose advisors include Esther Crawley; and reMEmber, who I don't know anything about. No ME Association, which is extraordinary. Are you aware of this, @Russell Fleming?