An Open Letter to BACME re ME/CFS Guide to Therapy 2025

Sparkly Unicorn said:
It's an excellent letter. Thank you to all involved. As BACME are a charity is it with considering adapting this as a complaint to the charity commission?

register-of-charities.charitycommission.gov.uk

British Association of Clinicians in ME/CFS (BACME) - Charity 1193035

Charity details for British Association of Clinicians in ME/CFS (BACME) - Charity 1193035
register-of-charities.charitycommission.gov.uk register-of-charities.charitycommission.gov.uk
Click to expand...
Exactly, as former longstanding of BACME former volunteers Trustees look to be moving on, like Ceri Rutter...

Time to put their narrative straight.. ??

They are a trade organisation for HCPs, to serve members, not to embrace 'Lived Experience' not patients or their carers!!!

That goes against co production principles enshrined in the 2014 Care Act!
 
Last edited:
Suffolkres said:
Exactly, as former longstanding of BACME former volunteers Trustees look to be moving on, like Ceri Rutter...

Time to put their narrative straight.. ??

They are a trade organisation for HCPs, to serve members, to embrace 'Lived Experience' not patients or their carers!!!

That goes against co production principles enshrined in the 2014 Care Act!
Click to expand...
I heard Anna Gregorowski was moving on?! But it might just be rumour. It seriously needs to fall apart. They just can't seem to realise they are actively harming people - and are stuck in some weird wishy washy faux compassion of 'helping' people 'holistically'
 
You must log in or register to reply here.
Back
Top Bottom