An Open Letter to BACME re ME/CFS Guide to Therapy 2025

[hotblack]

@Suffolkres, is this from Companies House or the Charities Commission?

Looks like the Charities Commission

 

[Peter T]

Looks like the Charities Commission

Yes it was the Charity Commission (BACME entry -
https://register-of-charities.chari...rityDetailsPortlet_organisationNumber=5150906 )

Note - most recently its income seems to be exclusively membership and conference fees.

 

[AliceLily]

Trial By Error: Interview with Jonathan Edwards about "Therapy Guide" from British Association of Clinicians in ME/CFS | Virology Blog​

By David Tuller, DrPH The British Association of Clinicians in ME/CFS, known as BACME, defines itself as “a multidisciplinary organisation providing informa ...

virology.ws

Very good interview, thank you both.

 

[Suffolkres]

Companies House I think. Will check.

 

[Suffolkres]

@Suffolkres, is this from Companies House or the Charities Commission?

Charities Commission

 

[dave30th]

. Maybe we shall see on Monday.

what is happening on Monday?

 

[Concentric_Spiral]

Are there good guidelines for therapists who have clients with ME/CFS out there?

 

[Chandelier]

what is happening on Monday?

Post in thread 'An Open Letter to BACME re ME/CFS Guide to Therapy 2025'

Yesterday at 4:30 PM

What's on Monday? (Sorry if I've missed that!)

A ForwardME meeting with DHSC rep.

• Jonathan Edwards

• 

 

[Jonathan Edwards]

Are there good guidelines for therapists who have clients with ME/CFS out there?

Probably not since there aren't any therapies.

 

[MrMagoo]

Are there good guidelines for therapists who have clients with ME/CFS out there?

I’ve just written one - see below

“Stop meddling and back off - you know nothing and you’re not helping”

 

[dratalanta]

The NICE guideline covers “diagnosis and management”. What additional guidance do BACME think is needed?

 

[PhysiosforME]

Are there good guidelines for therapists who have clients with ME/CFS out there?

Not aiming to self promote but we do have some resources on our website that hopefully help physios to understand why they need to do things differently with people with ME https://www.physiosforme.com/resources
People have also reported they've found our book helpful to show to physios involved in their care - whether it's for ME or something totally different such as MSK problems

 

[Concentric_Spiral]

Not aiming to self promote but we do have some resources on our website that hopefully help physios to understand why they need to do things differently with people with ME https://www.physiosforme.com/resources
People have also reported they've found our book helpful to show to physios involved in their care - whether it's for ME or something totally different such as MSK problems

Thanks very much. Sorry for the confusion - I was referring to psychotherapists.

 

[Robert 1973]

I've also posted this interview that I did with Jonathan earlier today:

Direct link to the interview on YouTube:

 

[Jonathan Edwards]

Direct link to the interview on YouTube:

I was quite pleased with that. I managed to say what I would have wanted to say. Thanks to David's choreography.

 

[forestglip]

Some posts about psychotherapy have been moved to a general discussion thread: Psychological therapies - Discussion thread

 

[dave30th]

Thanks to David's choreography.

it went well. It was short and to-the-point. and no editing was required!!

 

[Kitty]

it went well. It was short and to-the-point. and no editing was required!!

Yes, it was great—thanks to you both.

A particularly fine collection of eyebrows on show too.