AMA Journal of Ethics: What to do when symptoms are difficult to see or measure

[Wyva]

Physicians depend on the measurability and empirical verifiability of symptoms. Still, some symptoms defy observation and measurement, which can cause patients with a wide variety of conditions—including chronic fatigue syndrome, endometriosis, fibromyalgia, many psychiatric illnesses, multiple sclerosis and post-concussive syndrome—to suffer disadvantage and injustice if their physicians don’t take their reported symptoms seriously.

The July issue of AMA Journal of Ethics® (@JournalofEthics) investigates the ethical, clinical and social stakes of failing to view patients as authorities about their bodies and illness experiences. It also offers CME credit.​

I'm not sure how much this is ME/CFS specific (maybe not so much) but there are a couple of articles and podcasts listed:

https://www.ama-assn.org/delivering-care/ethics/what-do-when-symptoms-are-difficult-see-or-measure

 

[rvallee]

You just work at it. Not working at it lead us here. Had people worked at it it would have been solved. It's how everything works, you want results? You have to work for it.