Advocacy Action Alert: Senate Considers ME/CFS Funding Increase!

[Emily Taylor]

Tell Your Senator to “SUPPORT A FUNDING INCREASE FOR ME/CFS” Today!
Thanks to your hard work during ME/CFS Advocacy Week, the U.S. Senate Appropriations Committee is currently considering our request to increase federal ME/CFS funding to $9.9m. Ask your Senator to support this request today.
Our champion, Senator Markey, led two requests with 18 other Senators from both parties. These requests, if approved, can increase funding for ME/CFS research and education!

1) Requesting $9.9 million for ME/CFS programs at the CDC (Labor-HHS committee)
2) Adding ME/CFS to the Peer-Reviewed Medical Research Program (Defense committee)
Please contact your Senators TODAY and ask them to support these efforts.



Experienced Advocates! Check out the Advocacy Action Guide to take your advocacy to the next level.

 

[Alvin]

Very nice to potentially get more money!
Where would this money go if approved?

 

[Sean]

Dear patients in the USA

If you only ever contact your political representative about ME/CFS once in your life, this is the one to make the effort on.

Thank you

Signed
Non-USA patient.

 

[Emily Taylor]

Very nice to potentially get more money!
Where would this money go if approved?

There is only one single line item for ME/CFS in the federal budget - and it's the CDC program. The Committee Report Language accompanying the funding increase directs the money to be used for a national epidemiological study of ME/CFS in the USA (the first of its kind!) and expanding the medical education program.

 

[petrichor]

It would be really good if this was able to be passed. I hope everyone in the US contacts their senators.

 

[Alvin]

There is only one single line item for ME/CFS in the federal budget - and it's the CDC program. The Committee Report Language accompanying the funding increase directs the money to be used for a national epidemiological study of ME/CFS in the USA (the first of its kind!) and expanding the medical education program.

Thats interesting.
So determining prevalence and educating doctors.
If the money is passed is it the CDC who gets the cash and a directive to do these things?
Is there public input or does someone high up just make unilateral decisions?
Are there consultations on how to accomplish those?

 

[chrisb]

If it goes to the CDC perhaps we should start running book on which disease might be expected to benefit. Or have things really changed?