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Advocacy Action Alert: Senate Considers ME/CFS Funding Increase!

Discussion in 'Advocacy Action Alerts' started by Emily Taylor, Jun 6, 2019.

  1. Emily Taylor

    Emily Taylor Established Member (Voting Rights)

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    [​IMG]


    Tell Your Senator to “SUPPORT A FUNDING INCREASE FOR ME/CFS” Today!

    Thanks to your hard work during ME/CFS Advocacy Week, the U.S. Senate Appropriations Committee is currently considering our request to increase federal ME/CFS funding to $9.9m. Ask your Senator to support this request today.
    Our champion, Senator Markey, led two requests with 18 other Senators from both parties. These requests, if approved, can increase funding for ME/CFS research and education!

    1) Requesting $9.9 million for ME/CFS programs at the CDC (Labor-HHS committee)
    2) Adding ME/CFS to the Peer-Reviewed Medical Research Program (Defense committee)
    Please contact your Senators TODAY and ask them to support these efforts.

    [​IMG]

    Experienced Advocates! Check out the Advocacy Action Guide to take your advocacy to the next level.
     
  2. Alvin

    Alvin Senior Member (Voting Rights)

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    Very nice to potentially get more money!
    Where would this money go if approved?
     
  3. Sean

    Sean Senior Member (Voting Rights)

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    Dear patients in the USA

    If you only ever contact your political representative about ME/CFS once in your life, this is the one to make the effort on.

    Thank you

    Signed
    Non-USA patient.

    :thumbup: :hug:
     
  4. Emily Taylor

    Emily Taylor Established Member (Voting Rights)

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    There is only one single line item for ME/CFS in the federal budget - and it's the CDC program. The Committee Report Language accompanying the funding increase directs the money to be used for a national epidemiological study of ME/CFS in the USA (the first of its kind!) and expanding the medical education program.
     
  5. petrichor

    petrichor Senior Member (Voting Rights)

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    It would be really good if this was able to be passed. I hope everyone in the US contacts their senators.
     
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  6. Alvin

    Alvin Senior Member (Voting Rights)

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    Thats interesting.
    So determining prevalence and educating doctors.
    If the money is passed is it the CDC who gets the cash and a directive to do these things?
    Is there pubic input or does someone high up just make unilateral decisions?
    Are there consultations on how to accomplish those?
     
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  7. chrisb

    chrisb Senior Member (Voting Rights)

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    If it goes to the CDC perhaps we should start running book on which disease might be expected to benefit. Or have things really changed?
     
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