1. Read the 'News in Brief' post for w/c 16th Sept by clicking here, Guest.
    Dismiss Notice

Advocacy Action Alert: Senate Considers ME/CFS Funding Increase!

Discussion in 'Advocacy Action Alerts' started by Emily Taylor, Jun 6, 2019.

  1. Emily Taylor

    Emily Taylor Established Member (Voting Rights)

    Messages:
    76
    Likes Received:
    785
    Location:
    Los Angeles, CA
    [​IMG]


    Tell Your Senator to “SUPPORT A FUNDING INCREASE FOR ME/CFS” Today!

    Thanks to your hard work during ME/CFS Advocacy Week, the U.S. Senate Appropriations Committee is currently considering our request to increase federal ME/CFS funding to $9.9m. Ask your Senator to support this request today.
    Our champion, Senator Markey, led two requests with 18 other Senators from both parties. These requests, if approved, can increase funding for ME/CFS research and education!

    1) Requesting $9.9 million for ME/CFS programs at the CDC (Labor-HHS committee)
    2) Adding ME/CFS to the Peer-Reviewed Medical Research Program (Defense committee)
    Please contact your Senators TODAY and ask them to support these efforts.

    [​IMG]

    Experienced Advocates! Check out the Advocacy Action Guide to take your advocacy to the next level.
     
  2. Alvin

    Alvin Senior Member (Voting Rights)

    Messages:
    3,303
    Likes Received:
    16,020
    Very nice to potentially get more money!
    Where would this money go if approved?
     
  3. Sean

    Sean Senior Member (Voting Rights)

    Messages:
    1,703
    Likes Received:
    14,146
    Dear patients in the USA

    If you only ever contact your political representative about ME/CFS once in your life, this is the one to make the effort on.

    Thank you

    Signed
    Non-USA patient.

    :thumbup: :hug:
     
    Andy, adambeyoncelowe, Barry and 5 others like this.
  4. Emily Taylor

    Emily Taylor Established Member (Voting Rights)

    Messages:
    76
    Likes Received:
    785
    Location:
    Los Angeles, CA
    There is only one single line item for ME/CFS in the federal budget - and it's the CDC program. The Committee Report Language accompanying the funding increase directs the money to be used for a national epidemiological study of ME/CFS in the USA (the first of its kind!) and expanding the medical education program.
     
  5. petrichor

    petrichor Senior Member (Voting Rights)

    Messages:
    108
    Likes Received:
    402
    It would be really good if this was able to be passed. I hope everyone in the US contacts their senators.
     
    rvallee, Skycloud and adambeyoncelowe like this.
  6. Alvin

    Alvin Senior Member (Voting Rights)

    Messages:
    3,303
    Likes Received:
    16,020
    Thats interesting.
    So determining prevalence and educating doctors.
    If the money is passed is it the CDC who gets the cash and a directive to do these things?
    Is there public input or does someone high up just make unilateral decisions?
    Are there consultations on how to accomplish those?
     
    Last edited: Jun 19, 2019
    adambeyoncelowe likes this.
  7. chrisb

    chrisb Senior Member (Voting Rights)

    Messages:
    2,039
    Likes Received:
    13,792
    If it goes to the CDC perhaps we should start running book on which disease might be expected to benefit. Or have things really changed?
     
    Skycloud and adambeyoncelowe like this.

Share This Page