Action for ME's administration and how that affects its views about treatment

I believe in 2015 (and I expect since) SC pay was between 70-80 thousand pounds.

I get this figure from the end of year 2015 trustee report and accounts under (pg 28) Staff Costs -- subheading number of employees whose emoluments amount for the purpose of taxation to over 60 thousand pounds - 1
and then the range of that employees pay.

https://www.actionforme.org.uk/uploads/pdfs/trustee-report-and-accounts-2014-2015.pdf

But as others have stated it's more interesting to know from where the bread gets buttered.

ETA: found the 2016-2017 report
https://www.actionforme.org.uk/uploads/2016-2017-trustee-report-and-accounts.pdf

Pg 32 staff salaries the above 60,000 a yr now has no actual salary range.
 
Last edited:
For those who are interested in Gregor Purdie as medical Adviser to AfME here is something he authored in 2010, for Scotland.

http://www.scot.nhs.uk//wp-content/uploads/2015/06/GoodPracticeStatement.pdf

" Graded exercise therapy (GET) is intended to redress decline in physical fitness due to inactivity.18,19 GET has proved to be a particularly controversial form of treatment – which many patients have concerns about and some patients have indicated that GET has worsened their symptoms (see below). GET makes use of an exercise programme involving a gradual increase in exercise/activity. It must be delivered by a suitably trained GET therapist with experience in ME‐CFS, ideally on a one‐to‐one basis. Where fibromyalgia is also present, supervised aerobic exercise therapy may help physical capacity and relieve pain symptoms. 20 Some patients with ME‐CFS report that exercise programmes have been applied inflexibly at times, without consideration of individual circumstances and goals, sometimes with significant adverse responses. It is essential that agreement and negotiation are at the very centre of any GET programme."

"• Cognitive behavioural therapy (CBT) can be used, as in other chronic physical medical conditions, as a tool to aid people develop better ways of coping with symptoms such as fatigue, pain and sleep disturbance.18,21 CBT may be of value to patients when their symptoms have led to a psychological response that has compounded their problems."

Apologies if this has already been posted, just came across it on a FB group.
 
MEMarge said:
For those who are interested in Gregor Purdie as medical Adviser to AfME here is something he authored in 2010, for Scotland.

http://www.scot.nhs.uk//wp-content/uploads/2015/06/GoodPracticeStatement.pdf

" Graded exercise therapy (GET) is intended to redress decline in physical fitness due to inactivity.18,19 GET has proved to be a particularly controversial form of treatment – which many patients have concerns about and some patients have indicated that GET has worsened their symptoms (see below). GET makes use of an exercise programme involving a gradual increase in exercise/activity. It must be delivered by a suitably trained GET therapist with experience in ME‐CFS, ideally on a one‐to‐one basis. Where fibromyalgia is also present, supervised aerobic exercise therapy may help physical capacity and relieve pain symptoms. 20 Some patients with ME‐CFS report that exercise programmes have been applied inflexibly at times, without consideration of individual circumstances and goals, sometimes with significant adverse responses. It is essential that agreement and negotiation are at the very centre of any GET programme."

"• Cognitive behavioural therapy (CBT) can be used, as in other chronic physical medical conditions, as a tool to aid people develop better ways of coping with symptoms such as fatigue, pain and sleep disturbance.18,21 CBT may be of value to patients when their symptoms have led to a psychological response that has compounded their problems."

Apologies if this has already been posted, just came across it on a FB group.
Click to expand...

I, like many people, saw the drafts of the document. Dr Purdie is a good guy, he encouraged input from PWME and was very open to comments and informed discussion. He had the patients best interests at heart. My memory is the final document was considerably altered from the draft one, due to input from the BPS brigade led I think by Dr Clare Gerada, Professor Wessely's wife.
 
Arisoned said:
Does anyone know what happened to this? I remember the observatory being discussed a lot, did it become Decode?
Establish CFS/ME Observatory for epidemiological & social research
£503,028 on 28 Feb 2006 in City of Bristol
Nothing on a search of AFME’s website (lots of information seems to have been deleted from their website)
Click to expand...
It led to studies like this:
Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in three regions of England: a repeated cross-sectional study in primary care
https://pubmed.ncbi.nlm.nih.gov/21794183/
 
Arisoned said:
Does anyone know what happened to this? I remember the observatory being discussed a lot, did it become Decode?
Establish CFS/ME Observatory for epidemiological & social research
£503,028 on 28 Feb 2006 in City of Bristol
Nothing on a search of AFME’s website (lots of information seems to have been deleted from their website)
Click to expand...
"The Observatory is a collaboration between Action for M.E., the University of East Anglia, Hull-York-Medical School and the London School of Hygiene and Tropical Medicine."

from 2009

see post
https://www.s4me.info/threads/legal...ted-1st-october-2021.22626/page-3#post-378503
 
Snowdrop said:
I believe in 2015 (and I expect since) SC pay was between 70-80 thousand pounds.

I get this figure from the end of year 2015 trustee report and accounts under (pg 28) Staff Costs -- subheading number of employees whose emoluments amount for the purpose of taxation to over 60 thousand pounds - 1
and then the range of that employees pay.

https://www.actionforme.org.uk/uploads/pdfs/trustee-report-and-accounts-2014-2015.pdf

But as others have stated it's more interesting to know from where the bread gets buttered.

ETA: found the 2016-2017 report
https://www.actionforme.org.uk/uploads/2016-2017-trustee-report-and-accounts.pdf

Pg 32 staff salaries the above 60,000 a yr now has no actual salary range.
Click to expand...

Employees with total benefits over £60,000
Number of employees
£60k to £70k 2
£100k to £110k 1
Click to expand...
ACTION FOR ME - 1036419
 
Last edited:
Sly Saint said:
"The average salary for a Chief Executive Officer (CEO), Non-Profit Organization is £48,482 in 2025"
Click to expand...

Which one of the articles is that bit from?

It sounds a bit implausible unless you include very small organisations in the average. You'd need to compare it with other national charities with roughly the same number of employees to get an accurate sense.

If I'd had to pluck a guess out of the air for the CEO of a charity like AfME I'd have suggested about £90K for full time. That's lower than reality, but nowhere near as low as £50K. That looks to me more like a head of HR or a general manager.
 
I’d be more interested in seeing the median salary. Though in terms of salaries median’s tend to be lower than means.
 
You must log in or register to reply here.
Back
Top Bottom