You can also support them by playing a weekly lottery.
If you fancy a chance to win money while 'donating' then the Action for ME Spring Raffle 2025 runs 24 April 2025 - 11 July 2025.
Tickets can be purchased online, with "6 prizes up for grabs with the first prize starting at £1000 and 5 more of £100!".
ME Acion are the ones behind SequenceME right? Sounds like donating to them has a chance of being useful
I wonder if thing works outside the UK.
Yep thats what i meant. edited my post cuz brain fog. (Also what an idea ro name two charities so deceptively similarly lol)This is Action For ME, one of the two main UK charities, not ME Action. I definitely feel more comfortable donating to AfME than the ME Association these days.
Thanks, have edited my post to correct link.I think you used the wrong link Andy. Lottery here: https://www.actionforme.org.uk/support-us/other-ways-to-support-us/play-the-unity-lottery/
I think you used the wrong link Andy. Lottery here: https://www.actionforme.org.uk/support-us/other-ways-to-support-us/play-the-unity-lottery/
What about Invest In ME?I definitely feel more comfortable donating to AfME than the ME Association these days.
I have donated to IiME before via fundraisers and sponsored events. Being volunteer-led means all money raised goes to research but it also means they are stuck as a small charity and IMO they really need help to overhaul their identity/media.What about Invest In ME?
@PeterW looked at a bunch of 'comparable' (difficult call) illnesses to ME, including MS and Parkinson's, and did a comparison over several years of government/Wellcome vs charity funding of research, and found that most of the research funding came from charities. The data haven't been published but are shown in a video interview that I always struggle to find, but here's his summary of it.Danny is doing amazing fundraising and is right to try to inspire people with similar capabilities to do the same. I'm not sure it's accurate "The majority of research funding for all diseases comes from charities". I think when I was looking in dementia and stroke material, admittedly in the previous decade, they get more from the state than they raise privately? For dementia, it's probably because of economic cost / global targets to find treatment ...I'm not sure why for stroke, whether they sector struggles to fundraiser or whether the state thinks that it needs extra. It also might be because charity costs are going to towards support vs research, I don't know. It's interesting that a disease like Parkinson's, affecting half our numbers, as well as raising a lot of money and getting a lot of state money - (£100/p/yr) also are able to use privately raised money to pay for things like Parkinson's nurses.
@PeterW looked at a bunch of 'comparable' (difficult call) illnesses to ME, including MS and Parkinson's, and did a comparison over several years of government/Wellcome vs charity funding of research, and found that most of the research funding came from charities. The data haven't been published but are shown in a video interview that I always struggle to find, but here's his summary of it.
It's a lengthy (but very interesting) watch, but you can run your mouse along the timeline to see when Peter shows a chart summarising the data for each medical condition pops up. I wish I could find the link again!Yes I haven’t watched that yet as it’s lengthy but plan to, thanks for the reminder & link! I know it is the case for many illnesses but I don't think it is for stroke, dementia. I will see if the video covers those.