Hi Hutan. thanks! I've been on the CMRC patient group since its inception almost 2 years ago now, and we are as focussed as ever on getting / helping obtain funding for high quality biomedical research for the illness. As I pointed out!I've just watched the first ten minutes or so of the first link. Phil Murray speaks.
@phil_in_bristol Very interesting to hear of your background and thank you for your work. I was probably still slightly suspicious of any CMRC patient representative, but it is now clear to me that you are campaigning for good biomedical research and evidence-based treatment. Your presence in both the CMRC and AfME makes me much happier about the future direction of both of those organisations.
I thought Phil gave a good talk.I've just watched the first ten minutes or so of the first link. Phil Murray speaks.
It wasn't in her speech but in the Q&A afterwards. Having used the term she said 'that's a horrible word' so I'm guessing it was Medically Unexplained Symptoms, but she did do airquotes.Did she say Medically Unexplained Symptoms, or did she say medically unexplained symptoms? Maybe the problem is that some biopsychosocialists have misappropriated the english language.
Within seconds of speaking, the Countess of Mar said that AfME had recently improved by not being so adhered to the BPS.
Looking at my notes from yesterday: "Immediately criticises AfME's previous stance, praises Peter Spencer."
NICE guidelines pave the way forward for patients and doctors
The uncertainty inherent in making a diagnosis of chronic fatigue syndrome (CFS) is reflected by the variety of names (such as myalgic encephalomyelitis; ME) it has been given. The names reflect the hope that such labels can impose some certainty where little exists. Many doctors are reluctant to make a diagnosis of CFS, with half not even believing it exists.1 The consequences of this uncertainty and reluctance have been that patients hear mixed messages and often receive poor, if any, care.2 It is therefore a welcome relief that the National Institute for Health and Clinical Excellence (NICE) has just published clinical guidelines on the diagnosis and management of this disease.3