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This might be best segued with the before and after of Dianna Cowern, PhysicsGirl.
Dianna's day with Long COVID and ME/CFS.
Here is a small time-lapse of what it looks like in Dianna's room for a day. This is what she has been doing every day since January of 2023.
Many people think if she were in her room all day without anything to do, that she could maybe watching TV or reading books. But the mental toll ME/CFS takes disables her from being able to do anything fun that is mentally stimulating.
Dianna gets a few meals a day, a few words exchanged with her husband Kyle, and not much else.
Invisibility is a key theme of #MECFS. The disabling signs and symptoms are invisible, often even to the trained eye. They worsen until the person must stop participating in society; invisible signs and symptoms eventually make the whole person invisible.
Unknown, but it’s likely some of their staff have as they were often tagged too and their twitter accounts aren’t necessarily that huge.Does anyone know if Jon & John have actually seen any of the posts?
I don't know if this legislation applies to GWI, but it definitely should. And the overlap with us is strong.Joe Biden said:My son Beau was exposed to toxic smoke from burn pits while he served our country, so this is personal for my family as it is for so many of yours.
You shouldn’t have to prove that your illness came from your service.
And thanks to the PACT Act, now you don’t.
I just noticed that now GPT-models pre trained on data are available for free users too. Is someone up to the task of training one on Me-pedia, trial by error, and science for ME (if members consent). It would be so much more useful for us than vanilla chatgpt. I’m only half joking with the proposal.
edit: forestglip knows more about this than me, please refer to the message below mine.