2024: NIH National Institutes of Health - ME/CFS Symposium on Intramural study - 2 May

Dolphin

Dolphin

Senior Member (Voting Rights)
This thread has been split from the NIH News thread
The thread on the paper for the NIH ME/CFS study which is the subject of this symposium is here: Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

Link to the recording of the symposium here https://videocast.nih.gov/watch=54675


Dolphin said:
From: NIH MECFS Information <NIH-MECFS_INFORMATION@LIST.NIH.GOV> On Behalf Of NIH MECFS Information List
Sent: Thursday, April 11, 2024
To: NIH-MECFS_INFORMATION@LIST.NIH.GOV
Subject: News from NIH: Save the Dates for upcoming events


Please mark your calendar for these upcoming ME/CFS-related events:



May 2, 2024- PI-ME/CFS Intramural Study Symposium: This will be a hybrid meeting focusing on findings from the NIH ME/CFS Intramural Study. More information about the symposium, including agenda and registration, coming soon!



May 15, 2024—Meeting of the National Advisory Neurological Disorders and Stroke Council: The ME/CFS Research Roadmap will be discussed during this meeting. The open portion of the meeting will begin at 10:00AM ET and will be livestreamed on NIH Videocast. Meeting agenda will be available soon.


May 28, 2024—NIH ME/CFS Telebriefing/Webinar: The webinar will include updates from NIH on ME/CFS-related research activities and a scientific presentation by Dr. Avindra Nath, M.D., NINDS Clinical Director. Registration and Zoom details will be available soon.
Click to expand...
https://videocast.nih.gov/watch=54675

ME/CFS Symposium

Air date: Thursday, May 2, 2024, 9:00:00 AM

Time displayed is Eastern Time, Washington DC Local

Description: The purpose of the conference is to present findings the from ME/CFS study and the article Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome to the ME/CFS community. The ME/CFS conference will play a crucial role in advancing the mission of the National Institutes of Health (NIH) by fostering collaboration, disseminating cutting-edge research, and promoting a deeper understanding of ME/CFS. By convening experts, researchers, and healthcare professionals, the conference will serve as a platform for the exchange of knowledge, innovative ideas, and scientific findings related to ME/CFS. This is a one-time conference that has been scheduled to coincide with the publication of the article Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome in Nature magazine.
Author: Dr. Brian Walitt
Runtime: 7 hours

https://twitter.com/user/status/1781458815998640454
Click to expand...
 
Last edited by a moderator:
Dakota15 said:
Was this already shared? Wasn't sure so leaving here.

'We are excited to announce the upcoming PI-ME/CFS Symposium, which will be held on May 2, 2024 at the NIH Clinical Center in FAES Classrooms 3 & 4.' (Presentation Topics and Panel Discussions embedded)

'Registration now open'

https://mregs.nih.gov/channels/F1P5-F2L3
Click to expand...


From: NIH MECFS Information <NIH-MECFS_INFORMATION@LIST.NIH.GOV> On Behalf Of NIH MECFS Information List
Sent: Wednesday, April 24, 2024
To: NIH-MECFS_INFORMATION@LIST.NIH.GOV
Subject: News from NIH: Information regarding PI-ME/CFS Symposium on May 2


Registration is now open for the PI-ME/CFS Symposium, which will take place on Thursday, May 2, 2024, from 9:00am – 4pm ET on the NIH Campus in Bethesda, MD. The symposium will focus on findings from the NIH Intramural ME/CFS Study and include scientific presentations by several study authors, as well as panel discussions with researchers and study participants.


This is a hybrid event where you may attend in-person or tune in virtually on NIH videocast, a live-streaming video platform. Please note that registration is not required for virtual attendees. If you are joining by videocast and would like to ask the speakers questions, please email: mecfssymposium@ninds.nih.gov.


For the agenda and more information, please visit the symposium website.

https://twitter.com/user/status/1783152332412198996
Click to expand...
 
Dakota15 said:
Was this already shared? Wasn't sure so leaving here.

'We are excited to announce the upcoming PI-ME/CFS Symposium, which will be held on May 2, 2024 at the NIH Clinical Center in FAES Classrooms 3 & 4.' (Presentation Topics and Panel Discussions embedded)

'Registration now open'

https://mregs.nih.gov/channels/F1P5-F2L3
Click to expand...


Registration is NOT necessary for those viewing remotely.
 
Dakota15 said:
Was this already shared? Wasn't sure so leaving here.

'We are excited to announce the upcoming PI-ME/CFS Symposium, which will be held on May 2, 2024 at the NIH Clinical Center in FAES Classrooms 3 & 4.' (Presentation Topics and Panel Discussions embedded)

'Registration now open'

https://mregs.nih.gov/channels/F1P5-F2L3
Click to expand...

Thank you all so much for sharing this.

Looking at the PDF agenda shows the "effort preference" person is Madian, who I wasn't familiar with prior to this. As far as I see, looks like he's a relatively early career researcher who's primarily looked at non-pharma pain interventions, perceptions of pain, repetitive negative thought and emotional distress, etc. Hrm.


Overview of Neurophysiology: 10:50 -11:50 pm
Moderator: Mark Hallett
• Introduction
• Heart Rate Variability: Mark Levin
• Provocative autonomic testing and neurochemical analysis: David Goldstein
• Neurocognitive function: Joseph Snow
• Effort preferences: Nicholas Madian
• Physiology of repetitive submaximal exercise: EMG, fMRI, and TMS: Patrick Bedard
and Silvina Horovitz
• Summary


(might take me a couple of tries to get the hang of posting here- appreciate your patience!)

https://mregs.nih.gov/FileStorage/NINDS/F1P5-F2L3/Agenda for PI-ME-CFS symposium 4.19.24.pdf
 
Dolphin said:
From: NIH MECFS Information <NIH-MECFS_INFORMATION@LIST.NIH.GOV> On Behalf Of NIH MECFS Information List
Sent: Wednesday, April 24, 2024
To: NIH-MECFS_INFORMATION@LIST.NIH.GOV
Subject: News from NIH: Information regarding PI-ME/CFS Symposium on May 2


Registration is now open for the PI-ME/CFS Symposium, which will take place on Thursday, May 2, 2024, from 9:00am – 4pm ET on the NIH Campus in Bethesda, MD. The symposium will focus on findings from the NIH Intramural ME/CFS Study and include scientific presentations by several study authors, as well as panel discussions with researchers and study participants.


This is a hybrid event where you may attend in-person or tune in virtually on NIH videocast, a live-streaming video platform. Please note that registration is not required for virtual attendees. If you are joining by videocast and would like to ask the speakers questions, please email: mecfssymposium@ninds.nih.gov.


For the agenda and more information, please visit the symposium website.
Click to expand...
Reminder about this. Registration not required for virtual attendance.
Start time 1 am Friday in NZ; 11 pm Thursday in Sydney; 2 pm Thursday in UK
(I haven't double checked those times, there might be some daylight saving glitch, so just indicative)
 
I'm on the west coast so this NIH symposium starts at 6 AM my time (Pacific time).

But I'm going to try to watch this section (starts at 9:45 AM for me):

NIH PI-ME/CFS Symposium said:
Overview of Bioenergetics: 12:45 - 1:45 pm

Moderator: Kong Chen
  • Introduction
  • Post-exertional Malaise: Barbara Stussman
  • Cardiopulmonary Exercise Testing: Lisa Chin/Bart Drinkard
  • Body Composition and Actigraphy: Sam Lamunion
  • Diet: Shanna Yang and Sara Turner
  • Energy expenditure: Robert Brychta
  • Mitochondrial function: Paul Hwang
  • Summary
Discussion: 1:45 - 2:00 pm
Click to expand...
 
Agenda:

Opening remarks: 9:00 - 9:20 am Walter Koroshetz, Avi Nath

Description of the NIH Cohort and protocol: 9:20 - 9:35 am Brian Walitt

Overview of Immunology and Omics: 9:35 - 10:15 am
Moderator: Avi Nath
  • Introduction
  • Flow cytometry: Yoshimi Akahata
  • Gut microbiome: John McCulloch
  • OMICS: Brian Walitt
  • Summary
Discussion: 10:20 - 10:35 am

Coffee Break: 10:35 - 10:50 am

Overview of Neurophysiology: 10:50 -11:50 pm
Moderator: Mark Hallett
  • Introduction
  • Heart Rate Variability: Mark Levin
  • Provocative autonomic testing and neurochemical analysis: David Goldstein
  • Neurocognitive function: Joseph Snow
  • Effort preferences: Nicholas Madian
  • Physiology of repetitive submaximal exercise: EMG, fMRI, and TMS: Patrick Bedard and Silvina Horovitz
  • Summary
Discussion: 11:50 -12:05 pm

Lunch: 12:05 - 12:45 pm

Overview of Bioenergetics: 12:45 - 1:45 pm
Moderator: Kong Chen
  • Introduction
  • Post-exertional Malaise: Barbara Stussman
  • Cardiopulmonary Exercise Testing: Lisa Chin/Bart Drinkard
  • Body Composition and Actigraphy: Sam Lamunion
  • Diet: Shanna Yang and Sara Turner
  • Energy expenditure: Robert Brychta
  • Mitochondrial function: Paul Hwang
  • Summary
Discussion: 1:45 - 2:00 pm


Data management, Sharing, and Ongoing Work: 2:00 - 2:15 pm Brian Walitt

Panel Discussions: 2:15 - 3:15 pm

Study Participant Panel: Moderator: Vicky Whittemore

Scientific Panel: Moderator Anthony Komaroff
  • Vicky Whitmore, Joseph Breen, Anthony Komaroff, Ian Lipkin, Nancy Klimas
Summary and future directions: 3:15 - 3:30 pm Avi Nath
Closing remarks: 3:30 - 3:40 pm Nina Schor
Click to expand...
 
Last edited:
Hutan said:
Overview of Neurophysiology: 10:50 -11:50 pm
Moderator: Mark Hallett
  • Introduction
  • Heart Rate Variability: Mark Levin
  • Provocative autonomic testing and neurochemical analysis: David Goldstein
  • Neurocognitive function: Joseph Snow
  • Effort preferences: Nicholas Madian
  • Physiology of repetitive submaximal exercise: EMG, fMRI, and TMS: Patrick Bedard and Silvina Horovitz
  • Summary
Click to expand...
Doesn't look like the effort preferences presenter, Nicholas Madian, is even a staff member. Way to show respect to a whole patient community that you have labelled as having effort preference problems - not.

NIH Pain Research Center Staff
The following people work at the National Institutes of Health (NIH) Pain Research Center (PRC), the Clinical Investigations Branch (CIB) in the National Center for Complementary and Integrative Health (NCCIH) Division of Intramural Research (DIR), and/or the Section on Affective Neuroscience and Pain (SANP) in the NCCIH DIR.

Staff
David Shurtleff, Ph.D., Acting Director
Miroslav “Misha” Bačkonja, M.D., Supervisory Physician, Acting Clinical Director
Eleni Frangos, Ph.D., Staff Scientist, Lead Scientific Officer
Binquan Wang, Ph.D., Staff Scientist, Senior Data Scientist
Lauren Atlas, Ph.D., Senior Investigator, Chief, SANP
Alexander Chesler, Ph.D., Senior Investigator, Chief, Section on Sensory Cells and Circuits
Leorey N. Saligan, Ph.D., Clinical Collaborator
Hayley Owens, Clinical Research Coordinator and Sensory Testing Technician

Intramural Research Training Award Fellows
Shruthi Satyanarayana, Postbac Fellow, PRC

Alumni
Eleanor Goulden, Postbac Fellow, PRC
Nwamaka Ijeh, Postbac Fellow, PRC
Brendan Johns, Postbac Fellow, PRC
Nicholas Madian, Ph.D., Postdoc Fellow, PRC
Haley Prakke, Postbac Fellow, PRC
Michelle Singh, Postbac Fellow, PRC
Eunice Chung, Postbac Fellow, PRC
Megan Bradson, Postbac Fellow, PRC
Meera Deva, Postbac Fellow, PRC
Click to expand...
 
You must log in or register to reply here.
Back
Top Bottom