“I still can’t forget those words”:mixed methods study of persisting impact [of] psychosomatic and psychiatric misdiagnoses, 2025, Sloan+

[Dolphin]

ME Research UK:

Regrettably, many people with ME/CFS experience a psychosomatic and psychiatric misdiagnosis – where symptoms of a physical disease are erroneously attributed to mental health and lifestyle.

Interestingly, a paper published in the journal “Rheumatology” has investigated the impact of psychosomatic and psychiatric misdiagnoses on the well-being of people with systemic autoimmune rheumatic diseases (SARD) – many of which, such as Sjögren's syndrome and Lupus, have symptoms which overlap with ME/CFS.

Read more about what the study found, and how it relates to ME/CFS research here: https://bit.ly/4ioaGnG

https://twitter.com/user/status/1898025971422216192

 

[Nightsong]

"Trial By Error: New Study Documents Iatrogenic Harm from Perceived Psychosomatic and Psychiatric Misdiagnoses of Rheumatic Diseases":

https://virology.ws/2025/03/31/tria...ychiatric-misdiagnoses-of-rheumatic-diseases/

 

[Liie]

I had missed this study and David's blog post.

I think studies like this can be impactful for making people understand how harmful the psychosomatic perspective can be for people with ME/CFS.

 

[V.R.T.]

“It has affected my mental health very negatively and I do think it’s affected me in my like sense of self…it’s not good for anyone at any age but as a teenage girl being told you don’t know your own feelings is absolutely no way to shape a human being…I protect myself all the time…and the fury that I feel all the time” (Ppt 1159, SLE, Ireland)

I began to have symptoms that were dismissed as psychosomatic at age 19, and developed full ME at 26.

Being told repeatedly as a young man that you are experiencing awful, unquantifiable sensations, insomnia etc because you're weak and anxious and unhealthy by medical professionals is absolutely soul destroying. The shape of my entire life was altered by my doomed attempts to mind over matter through said symptoms, and eventually PEM.

It prevented me from developing any sense of confidence in myself or my judgement.

 

[Liie]

is absolutely soul destroying

I'm sorry to hear that. I can absolutely imagine that it is so.

There should be more research about how psychosomatic treatment harms people.

 

[Liie]

is absolutely soul destroying

The psychosomatic and "functional" psychologists often write in their articles that their treatment is "safe". It annoys me so! Of course it is psychologically harmful to treat people for psychosomatic illness if that is not what they're having. They are psychologists! This is a thing they are supposed to be able to understand! Why are they pretending!