young people

https://adc.bmj.com/content/110/Suppl_1/A152 Young People’s Health Special Interest Group 7799 Healthcare experiences of young people with CFS/ME in their own words Hector Watson1, Terry Segal2 University Hospitals of Derby and Burton NHS Foundation Trust University College London Hospitals...

[Neither the paper nor even the title of the paper seems to be available yet based on a quick search] https://www.eurekalert.org/news-releases/1084605 News Release 20-May-2025 Study finds alarming rates of anxiety and depression in children with long COVID Kennedy Krieger Institute research...

Unseen Struggles: Assessing the impact of long COVID on students and the need for educational support in schools Lisha Veerakumar, Sanandhana Vetrivelan [Line breaks added] Highlights • Long COVID symptoms, though often considered not serious, can significantly impact children’s lives...

Characterisation and Management of Children and Young People Referred to a Paediatric Tertiary Post-COVID Service Anne-Lise Goddings; Rebecca Johnston; Elizabeth Wortley; Ria Patel; Holly Boyd; Fiona Newlands; Roz Shafran; Benjamin Baig; Elizabeth Whittaker; Terry Y. Segal PURPOSE Post-COVID...

2014 paper Sarah Knight, Adrienne Harvey, Susan Towns, Donald Payne, Lionel Lubitz, Kathy Rowe, Colette Reveley, Sabine Hennel, Harriet Hiscock, Adam Scheinberg Abstract Aim The diagnosis and management of paediatric chronic fatigue syndrome/myalgic encepnalomyelitis (CFS/ME) represent ongoing...

Behavior Assessment System for Children, Parent Rating Scales (BASC- PRS) is being used by a current study investigating omics in young people with ME/CFS. I thought it would be useful to have a closer look at it. It is a 173 item survey that parents fill out about their child. It costs over...

Child-Ethical Research and Ethical Child-Research Subjecting children to ethical, co-produced ME / CFS research (or study or review) the designs presented to the ethics committees, in the proposals, surely did stumble, trip and fall upon a particular problem peculiar to the domain of ME / CFS...

Pediatric SARS-CoV-2 long term outcomes study PECOS: cross sectional analysis at baseline Montealegre Sanchez, Gina A, DeBiasi, Roberta L et 48 al. BACKGROUND PECOS is an ongoing study aimed to characterize long-term outcomes following pediatric SARS-CoV-2 infection. METHODS This is a...

Postacute Sequelae of COVID-19 in Pediatric Patients Within the United States: A Scoping Review Miller; Borre; Green; Funaro; Oliveira; Iwasaki A subset of children and adolescents experience recurrent or persistent symptoms following SARS-CoV-2 infection, known as postacute sequelae of...

Consequences beyond acute SARS-CoV-2 infection in children Sharon H. Saydah, Angela P. Campbell, Adrienne G. Randolph Abstract Although most children are spared from developing complications from SARS-CoV-2 infection, some may suffer consequences including Long Covid and multisystem...

Assessing severity of illness and outcomes of treatment in children with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME): a systematic review of patient-reported outcome measures (PROMs) K L Haywood 1, S M Collin, E Crawley Abstract Chronic Fatigue Syndrome or Myalgic...

Abstract Objective Functional somatic symptoms are associated with significant distress and impairment for children and their families. Despite the central role that families play in their children’s care, there is little clinical research to guide how parents can support their children with...

Now published - link here ____________________ Preprint Pediatric Long COVID Subphenotypes: An EHR-based study from the RECOVER program Vitaly Lorman; L Charles Bailey; Xing Song; Suchitra Rao; Mady Hornig; Levon Utidjian; Hanieh Razzaghi; Asuncion Mejias; John Erik Leikauf; Seuli Bose Brill...

Key Points Question What prolonged symptoms experienced by youth are most associated with SARS-CoV-2 infection? Findings Among 5367 participants in the RECOVER-Pediatrics cohort study, 14 symptoms in both school-age children (6-11 years) and adolescents (12-17 years) were more common in...

A quest to manage CYP with ME/CFS and long covid under one MDT service – evaluation of a regional centre for CYP ME/CFS and long covid services Abstract Objectives Long Covid (LC) is a debilitating condition seen both in adults and CYP since COVID-19 pandemic.1 The similarities between LC and...

“I feel like a ghost.” How included to children and young people with chronic conditions feel in their education, and what can we learn from their lived experiences? As a parent of a young person with ME/CFS, as well as a special education teacher, I bring these two aspects of my identity...

Abstract Background: Paediatric chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) has a prevalence of 0.4–2.4% and is defined as ‘generalised disabling fatigue persisting after routine tests and investigations have failed to identify an obvious underlying cause’. One-third of young...

Hello! I’m looking to recruit participants in the UK aged 16-25 who had ME/CFS during secondary school. I am a Trainee Educational Psychologist completing my doctoral research project exploring experiences of support in secondary school for those living with ME/CFS. This research is important...

Charlotte Angelhoff, Karel Duchen, Per Ertzgaard, Patrik Rytterström, Navigating an unfamiliar world – Parents' experiences of having a child with post COVID-19, Journal of Pediatric Nursing, 2024, ISSN 0882-5963, https://doi.org/10.1016/j.pedn.2024.05.023...

Prevalence and co-occurrence of cognitive impairment in children and young people up to 12-months post infection with SARS-CoV-2 Omicron variant Foret-Bruno; Shafran; Stephenson; Nugawela; Chan; Ladhani; McOwat; Mensah; Simmons; Fox Smith; D'oelsnitz; Xu; Dalrymple; Heyman; Ford; Segal; Chalder...