sweden

In August 2024 the National Board of Health and Welfare in Sweden (Socialstyrelsen), published national guidelines for post covid, post influenza, post sepsis, post intensive care syndrome, ME/CFS and PANS/PANDAS. The guidelines are really unhelpful and has been heavily criticised, most of all...

Dissatisfaction with the Swedish National Board of Health and Welfare's new knowledge support for post-infectious diseases such as ME and postcovid is simmering. Both healthcare professionals working with these diagnoses, researchers, and the patients themselves are raising serious concerns...

Charlotte Angelhoff, Karel Duchen, Per Ertzgaard, Patrik Rytterström, Navigating an unfamiliar world – Parents' experiences of having a child with post COVID-19, Journal of Pediatric Nursing, 2024, ISSN 0882-5963, https://doi.org/10.1016/j.pedn.2024.05.023...

In the media's review of the physician and researcher Jonas Axelsson and the private healthcare company Ameliekliniken during the fall and winter of 2023, it emerged that Axelsson has received a 5 million (SEK) grant from the IKEA founder's (Kamprad) foundation for research on ME. I have dug...

This thread is for a list of sub-national Swedish ME/CFS and Long Covid organisations. National organisations are listed in ME/CFS and Long Covid charities/ organisations - International and National. RME Dalarna Vastmanland RME Halland RME Jönköping RME Kalmar RME Kronoberg Blekinge RME...

Abstract Purpose Orthostatic hypotension is a common condition with heterogeneous and, in many cases, unclear underlying pathophysiology. Frequent symptoms are syncope and falls with a strong impact on daily life. A two-generation family with eight individuals segregating early-onset severe...

Post COVID-19 symptoms are common, also among young adults in the general population Mogensen, Ida; Ekström, Sandra; Hallberg, Jenny; Georgelis, Antonios; Melén, Erik; Bergström, Anna; Kull, Inger Post coronavirus disease-19 (post COVID-19) is mainly studied in clinical populations and less is...

The Swedish patient organisation RME has organised a big ME conference every autumn for several years in a row. This year they are organising a new conference together with the patient organisations in Norway, Finland and Denmark. The conference will take place in Stockholm and in Göteborg. It...

Moved from News from Scandinavia Pressträff med socialministern och sjukvårdsministern om regeringsuppdrag relaterade till postcovid https://www.regeringen.se/pressmeddelanden/2023/04/presstraff-med-socialministern-och-sjukvardsministern-om-regeringsuppdrag-relaterade-till-postcovid/

Posts moved from News from Scandinavia Local news from Stockholm, Sweden. According to a news article today, the politicians of Region Stockholm (the local government responsible for healthcare among other things) have decided to terminate the contract for Exhaustion Disorder and Chronic Pain...

Purpose: Patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) present with a broad spectrum of symptoms, including headache. A simple, yet powerful tool – the pain drawing identifies essential aspects such as pain distribution. The aim with this study was to 1) evaluate the...

Moved from the News from Scandinavia thread (This isn't news, but I wasn't sure where else to put it. Sorry. Felt important to document.) This is from a post by Dr Björn Bragée of Bragée ME-center in Stockholm, Sweden. It was published in March 2021, in a public Facebook group on precision...

There will be a webinar on post covid, in Swedish, Friday 6 May, 10.00-12.00. Free of charge, open to anyone. Registration is required. Program and registration: https://www.hjart-lungfonden.se/postcovid/ Organizers: the Swedish Heart Lung Foundation in collaboration with the Royal Swedish...

Evaluation of science advice during the COVID-19 pandemic in Sweden Nele Brusselaers, David Steadson, Kelly Bjorklund, Sofia Breland, Jens Stilhoff Sörensen, Andrew Ewing, Sigurd Bergmann & Gunnar Steineck Abstract Sweden was well equipped to prevent the pandemic of COVID-19 from becoming...

1177.se Vårdguiden: ME/CFS https://www.1177.se/sjukdomar--besvar/hjarna-och-nerver/langvarig-trotthet-och-narkolepsi/mecfs/ Viss.nu: ME/CFS https://viss.nu/kunskapsstod/vardprogram/me-cfs Riksförbundet för ME-patienter https://rme.nu

Characterization and Intervention Studies in Patients with Postural Orthostatic Tachycardia Syndrome and Inappropriate Sinus Tachycardia Associated with Post-Acute COVID-19 Syndrome Principal Investigator: Dr. Marcus Stahlberg [Ståhlberg], Karolinska University, Sweden "The overall purpose of...

Introduction What has been included under the umbrella term “Functional somatic syndromes” (FSS) has varied over the years. Diagnoses such as “somatoform” and “somatic symptom disorders,” as well as “medically unexplained symptoms,” have been included in FSS (1). Although there is no complete...

Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is an illness characterized by a diverse range of debilitating symptoms including autonomic, immunologic, and cognitive dysfunction. Although neurological and cognitive aberrations have been consistently reported, relatively...

SAGE Open Nursing "Can Someone as Young as You Really Feel That Much Pain?" - A Survey on How People With Fibromyalgia Experience Healthcare in Sweden - Hasselroth et al - 2021 Research show that fibromyalgia has low credibility in healthcare, leading to poor treatment, lack of knowledge and...

Masano Health AB is a privately owned digital rehab company in Sweden. It's a quite new company, started in November-December 2020 according to information on their website. They updated their website yesterday to add information about their digital rehab for ME/CFS...