sussex me society

New BACME guidelines for severe ME See post #17 for copy of the 2019 BACME document and post #43 for the 2024 update " The Sussex ME Society works for the nearly 5,000 people in the county affected by Myalgic Encephalopathy (ME) or Chronic Fatigue Syndrome(CFS) including many people from the...

CFS/ME National Services Survey Feb 2018 Snap shot audit BACME National Services Workstream Report Published March 2019 https://www.bacme.info/sites/bacme.info/files/BACME CFS ME National services survey March19.pdf

I'm sure the MEA would claim that they are being a neutral broker of information that PwME might find interesting but personally I'm disappointed that they continue to aid a group that, to my knowledge, still supports PACE and has close ties to BACME.

Source: Brighton & Hove Independent Date: August 7, 2018 Author: Amy Horsfield URL: https://www.brightonandhoveindependent.co.uk/news/health/scientist-joins-sussex-me-society-s-advisory-team-1-8593430 Scientist joins Sussex ME Society's advisory team...

via http://www.theargus.co.uk/enewspapers/

Source: Sussex & Kent ME/CFS Society Date: June 26, 2018 URL: http://www.measussex.org.uk Brighton MPs Support ME ----------------------- Brighton Kemptown MP, Lloyd Russell-Moyle and Brighton Pavilion MP, Caroline Lucas, who is a Patron to the Sussex & Kent ME/CFS Society have both written...

My adult daughter has worsened recently and needs help, especially with orthostatic intolerance which is affecting her ability to work and increasing her anxiety. To date the only help she has had has been psychologically orientated, she's engaged with it fully and her latest NHS therapist...

I'm not very impressed with this article, but then it is from "a member of the Sussex & Kent ME Society". Source: The Sussex Argus Date: May 11, 2018 URL: http://www.theargus.co.uk/news/16219467.I___m_living_with_chronic_fatigue_but_I___m_coping/ Brighton woman on living with ME aka Chronic...

https://www.bacme.info/patient-support-groups See link at the bottom of the page, "Message from the Chair on ME Awareness Month 2018" Dear Members, The merry month of MAY is not such a merry month for all of us, especially those who are ill; it is however a hardworking month for ME Awareness...

Posted by Dr. Marc-Alexander Fluks to various fora. Can't find it online, only similar ones including 'thousands' instead of 'hundreds' of patients. Source: ME Association Winter magazine Ref: http://www.measussex.org.uk Thirty years of seeing patients with ME/CFS...