social support

  1. P

    Request for Steering Group members to guide a study on online connections of people with ME/CFS and their offline lives

    Project: I am studying for a PhD on the social implications of having a long term chronic illness, namely ME/CFS. As part of my research I am conducting: A qualitative study on the online connections of people with ME/CFS and the relationships between these online connections and offline lives...
  2. SNT Gatchaman

    The double invisibility of Long Covid in children, 2024, Wild et al.

    The double invisibility of Long Covid in children Wild; MacLean; Nettleton; Hunt; Ziebland The Covid-19 pandemic has been dominated by discussions of mild and short-lasting cases or acutely serious or lethal forms of the disease; less attention has been paid to long-term Covid-19 symptoms...
  3. SNT Gatchaman

    Return-to-work with long COVID: An Episodic Disability and Total Worker Health® analysis, 2023, Stelson et al.

    Return-to-work with long COVID: An Episodic Disability and Total Worker Health® analysis Stelson; Dash; McCorkell; Wilson; Assaf; Re'em; Wei A growing number of working individuals have developed long COVID (LC) after COVID-19 infection. Economic analyses indicate that workers’ LC symptoms...
  4. O

    The Impact of a Peer Social Support Network from the Perspective of Women with Fibromyalgia: A Qualitative Study, 2021, Reig-Garcia et al

    Abstract Background: Fibromyalgia is a chronic and complex disease whose management by patients requires a high level of commitment. Patient empowerment therefore represents an important milestone in chronic disease treatment and control. We explored the impact of a peer social support network...
  5. Dolphin

    A meta-ethnography of people with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) and their support needs, 2020, Pilkington et al

    https://www.sciencedirect.com/science/article/abs/pii/S0277953620305888 Some of these have been involved with annoying papers in the past Social Science & Medicine Available online 16 September 2020, 113369 In Press, Journal Pre-proof
  6. Andy

    Fatigue-Related Cognitive-Behavioral Factors in Survivors of Childhood Cancer, 2020, Knoop et al

    Full title: Fatigue-Related Cognitive-Behavioral Factors in Survivors of Childhood Cancer: Comparison with Chronic Fatigue Syndrome and Survivors of Adult-Onset Cancer Paywall, https://www.liebertpub.com/doi/10.1089/jayao.2020.0094 Sci hub, https://sci-hub.tw/10.1089/jayao.2020.0094
  7. rvallee

    Social Services Can Threaten Families of Children with Chronic Fatigue

    Pretty good article from Vice about the reality of social services in the UK threatening sanctions against the parents of children with ME. People think such barbaric nonsense is in the past. Not so much...
  8. Andy

    Could disease labelling have positive effects? An experimental study exploring the effect of the CFS label on intended social support, 2018, Noble

    Paywalled at https://www.sciencedirect.com/science/article/pii/S0738399118308838
  9. Indigophoton

    Effects of unsupportive social interactions, stigma, and symptoms on patients with myalgic encephalomyelitis and cfs, McManimen et al, 2018

    From Leonard Jason's group, https://onlinelibrary.wiley.com/doi/abs/10.1002/jcop.21984 Full paper available at http://sci-hub.tw/10.1002/jcop.21984
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