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severe me

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Thread
Norway: Røysumtunet, a centre for severe ME patients

Promising news from Norway. The Norwegian ME Association is working together with the foundation and institution Røysumtunet with plans on...

Thread by: Kalliope, Feb 28, 2020, 34 replies, in forum: Other clinics and doctors
Thread
Submissions are now sought for a special journal edition, "ME/CFS - The Severely & Very Severely Affected"

Submissions are now sought for a special journal edition, "ME/CFS - The Severely & Very Severely Affected" Guest Editors: Dr. Kenneth Friedman...

Thread by: Tom Kindlon, Feb 20, 2020, 3 replies, in forum: General ME/CFS news
Thread
The Norwegian ME Association's report on severe ME

The Norwegian ME Association has published a report about severe ME based on a survey among 586 ME-patients and 198 carers. The report has been...

Thread by: mango, Jun 25, 2019, 62 replies, in forum: General ME/CFS news
Thread
Frontiers in Medicine is interested in doing a special edition on "ME/CFS -The Severely Affected" if there is sufficient interest

[MEDIA] [MEDIA]

Thread by: Tom Kindlon, Apr 12, 2019, 8 replies, in forum: General ME/CFS news
Thread
United Kingdom: BACME Guidelines for Severe ME 2019

New BACME guidelines for severe ME " The Sussex ME Society works for the nearly 5,000 people in the county affected by Myalgic Encephalopathy...

Thread by: Sly Saint, Jan 29, 2019, 42 replies, in forum: General ME/CFS news
Thread
New Website on Severe ME

I have created a website on severe ME: “A Life Hidden is dedicated to those shut away from the world because of the intense suffering of ME...

Thread by: Naomi10, Nov 29, 2018, 9 replies, in forum: Advocacy Projects and Campaigns
Thread
Defining the prevalence and symptom burden of those with self-reported severe CFS/ME: a ... community pilot study... (2017) Strassheim et al

Objectives To define the prevalence of severe chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) and its clinical characteristics in a...

Thread by: John Mac, Sep 20, 2018, 26 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
Thread
The 25% ME Group: The Crushing Physical Burden of ME

The 25% ME Group: The Crushing Physical Burden of ME by Simon Lawrence of the 25% ME Group for those with severe ME on 14/08/2018...

Thread by: Eagles, Aug 15, 2018, 4 replies, in forum: ME/CFS research news
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book:Understanding Severe ME - Essential Guide for Family & Friends

Anyone read this book or know anything about the Essex severe ME service which was run by Prof Findley which the author Catherine Saunders got...

Thread by: NelliePledge, Aug 2, 2018, 20 replies, in forum: General ME/CFS news
Thread
Interview with Howard Bloom Where He Talks Extensively About Severe ME Viewed Over 500000 Times in 1st Day

The long version of this clip where Howard Bloom recalls having severe ME has been viewed 500000 times in 1 day... [MEDIA]

Thread by: Rossy191276, May 23, 2018, 29 replies, in forum: General Advocacy Discussions
Thread
Caretaking resources and info needed

My 33 yr old daughter is 95% bed bound. Ill for 2-3 years, and progressively getting worse though we are trying treatments with a ME specialist...

Thread by: Kafka, Apr 11, 2018, 9 replies, in forum: Caregiver support
Thread
Tjenesten og MEg | The health service and ME, Ongoing, Sintef FaFo

This thread has been split from the 'News from Scandinavia' thread Thought it might be useful to have a thread on news from Scandinavia....

Thread by: Kalliope, Nov 2, 2017, 53 replies, in forum: Psychosomatic research - ME/CFS and Long Covid

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