After a long saga for the past 8 months involving chronic infections and adverse reactions to multiple treatments, I am due to have surgery soon,...
In November, as part of the UK Malnutrition Awareness Week, Helen Baxter of The 25% ME Group gave a presentation at the Malnutrition Taskforce...
Has anyone who is severe found a cell phone that they can tolerate? Member Samuel needs a phone but he has severe photophobia, sensitivity to...
Full title: Investigating antibody reactivity to the intestinal microbiome in severe myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)...
I saw this post by @MEFoggyDog on Mastodon so I thought I'd share. This same hashtag - #MPDoYourJobForME - is also being used on twitter so you...
Presentation Name of the event: 19th Biennial European Society for Health and Medical Sociology Conference Sted: Forli, Italy Date from: 25...
Ensuring the Voice of the Very Severely Affected Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patient Is Heard in Research—A Research Model...
Hi All, I have just had a request from the Department of Health & Social Care policy team for a citation supporting the often cited statistic...
What is ankle bathing? Is this similar to contrast bathing? Comparison of the acute effects of ankle bathing versus moderate-intensity...
I would like to see a campaign to end malnutrition in patients with severe ME. For this purpose, I am currently gathering information so I can...
Abstract Background: About 10% of individuals who contract infectious mononucleosis (IM) have symptoms 6 months later that meet criteria for...
This is a post collating what I learned, when trying to access surgery as someone with the symptoms of Severe / Very Severe ME. I hope it is...
ABSTRACT Objective The prevalence of pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has been estimated from an ethnically...
UNDEREXPOSED within four walls of severe m.e photography exhibit trailer UNDEREXPOSED within four walls of severe m.e photography exhibit launches...
Hello everyone, I'm doing some research which may or may not lead to writing an article. When reading old newspaper articles from The...
Thirty ‘Smile’ gifts have been posted in Merryn Crofts’ memory to fellow Severe ME sufferers. Merryn, of Norden, sadly died in 2017, just days...
I'm a bit late sharing this, since it was published on March 8, and I keep forgetting to post! But I really enjoyed this essay written by...
Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex, only partially understood multi-system disease whose onset and...
Advocacy work can involve surveys - online/ telephone/ hard copy. Much of the time, those who are most severly affected can find it difficult to...
Severe ME: More Notes for Carers by Greg Crowhurst https://www.stonebird.co.uk/
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