qmul

  1. J

    More PACE trial data released

    I first applied back in 2016. I went through review and then a complaint to the ICO and then all through last year I was in the process of an appeal to the FTT. The ICO switched right at the end to support me and QMUL settled, promising to send me the data, 'if they could'. Today I have just...
  2. J

    Appeal to the FTT for information from QMUL rejected

    Decision here. https://www.dropbox.com/s/kc9ezxfk51t1eu5/014%20040419%20Decision.pdf?dl=0
  3. Sly Saint

    2014 Impact case study - Oxford University - CFS

    see the one for QMUL here: https://www.s4me.info/threads/2014-impact-case-study-queen-mary-university-of-london-qmul-cfs.7076/ this one is also included on that thread but thought I'd go through it given recent events with MS. so this is what we have to thank Oxford University for: [no...
  4. Sly Saint

    2014 Impact case study - Queen Mary University of London (QMUL) - CFS

    Didn't know where to post this or if it has been posted before; https://www.qmul.ac.uk/wolfson/media/wolfson/ref-2014-results/UoA2-chronic_fatigue_syndrome.pdf We have so much to thank QMUL for
  5. Esther12

    FOI request to QMUL on how they decided it would take too long to release information on the PACE trial

    Only just seen this (I google less frequently than I used to): https://www.whatdotheyknow.com/request/cfs_the_volume_of_objective_data#outgoing-766327 Only interesting for how little info they provide. It seems that all that is needed for QMUL to decide that they should not release data...
  6. Esther12

    ICO ruling: QMUL should release copies of COI statements made to the Trial Management Group

    Just had this ruling pop up on google: https://ico.org.uk/media/action-weve-taken/decision-notices/2018/2258454/fs50696884.pdf I vaguely remember some controversy about someone (Aylward?) failing to properly declare his COI? I can't remember the details though. I think I may have seen someone...
  7. Kalliope

    Trial By Error: QMUL and FOI; Nature and Cochrane; the Pineapple Fund

    QMUL and FOI; Nature and Cochrane; the Pineapple Fund
  8. J

    PACE trial data

    I have received the decision from the ICO who accept that QMUL do not hold the anonymized data. The decision is here: https://ico.org.uk/media/action-weve-taken/decision-notices/2018/2173169/fs50673373.pdf I am intending to appeal. I have also made a similar request to KCL.
  9. Esther12

    A general thread on the PACE trial!

    You may have heard of it? At the other place, some of us wrote a word or two about it. I thought it might be good to have a thread for PACE chats, or for new people to ask questions, that didn't necessarily relate to important new papers, or anything that warranted a new thread. I could post...
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