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pace trial

Page 3 of 10
  1. Adam pwme
    Thread

    New Video - The PACE trial - Part 1: Moving the goalposts

    [MEDIA] Half the research spending for ME in a 10 year period in the UK went on the widely discredited £5M PACE trial [1]. The trial is taught in...
    Thread by: Adam pwme, Jul 29, 2019, 88 replies, in forum: Advocacy Projects and Campaigns
  2. Esther12
    Thread

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    Moderator note: Posts on this thread have come from three places, this thread and the following two threads. They have been copied or moved to...
    Thread by: Esther12, Jul 28, 2019, 179 replies, in forum: General Advocacy Discussions
  3. daftasabrush
    Thread

    Failed PACE trial grant submissions

    Before the approval of the PACE trial there were several similar failed submissions to the MRC - only when they added "Specialist" Medical Care...
    Thread by: daftasabrush, Jul 20, 2019, 3 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  4. JohnTheJack
    Thread

    REC advice on PACE trial data changed in favour of release

    I pursued this after the failure of PLOSONE to make the researchers hand over the data in compliance with the journal policy. The researchers...
    Thread by: JohnTheJack, Jul 11, 2019, 46 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  5. Sly Saint
    Thread

    Royal Free - PACE trial involvement, CBT and GET justification

    On Royal Free website: CFS/ME research Royal Free London chronic fatigue syndrome/ME research project: the PACE trial The Royal Free London...
    Thread by: Sly Saint, Jun 21, 2019, 17 replies, in forum: Psychosomatic theories and treatments discussions
  6. Estherbot
    Thread

    Presidential election RCGP

    The Royal College of General Practioners (RCGP) is having its Presidential election soon....
    Thread by: Estherbot, May 21, 2019, 7 replies, in forum: Advocacy Action Alerts
  7. Eagles
    Thread

    The Canary: A DWP-backed ‘medical scandal’ could be blown wide open

    The Canary: A DWP-backed ‘medical scandal’ could be blown wide open...
    Thread by: Eagles, May 11, 2019, 2 replies, in forum: General ME/CFS news
  8. Andy
    Thread

    Blog: The PACE Trial: How a Debate Over Science Empowered a Whole Community [Carolyn Wilshire/ME Association]

    One group of science-minded patients – including Tom Kindlon, Robert Courtney and Alem Matthees – carefully examined the trial publications, and...
    Thread by: Andy, May 9, 2019, 36 replies, in forum: General ME/CFS news
  9. JohnTheJack
    Thread

    More PACE trial data released

    I first applied back in 2016. I went through review and then a complaint to the ICO and then all through last year I was in the process of an...
    Thread by: JohnTheJack, May 7, 2019, 238 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  10. JohnTheJack
    Thread

    KCL and the PACE data

    KCL also claimed that it doesn't hold the data in terms of the FOIA. The ICO upheld the KCL decision, so I appealed to the FTT. In the course of...
    Thread by: JohnTheJack, May 1, 2019, 8 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  11. Obermann
    Thread

    Two pieces of PACE satire on Twitter

    Most of you have probably already seen these tweets, but I post them here for those of you who don't have Twitter or who missed them: [ATTACH]...
    Thread by: Obermann, Apr 24, 2019, 4 replies, in forum: General Advocacy Discussions
  12. Suffolkres
    Thread

    Claim (PACE) ME/CFS cured by changing mind on way out HealthInsightUK Blog post by Jerome Burne (2019)

    http://healthinsightuk.org/2019/04/22/the-claim-that-the-cure-for-the-crippling-fatigue-of-mecfs-was-to-change-your-mind-always-seemed-bizarre-now-...
    Thread by: Suffolkres, Apr 22, 2019, 47 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  13. MSEsperanza
    Thread

    David Tuller On Exposing the Bad Science Behind the Biopsychosocial Effort to Define ME/CFS (Cort Johnson, HealthRising)

    David Tuller is a unique figure in the ME/CFS universe. A reporter and editor for the San Francisco Chronicle, Salon and writer for the New York...
    Thread by: MSEsperanza, Apr 17, 2019, 9 replies, in forum: General ME/CFS news
  14. Andy
    Thread

    Jerome Burne: "Independent investigation reveals NICE approved treatment only a fraction as effective as experts claim it is", 2016

    As he has cropped up in another thread, thought I would post Jerome's write-up about the release and initial re-analysis of the PACE data. Just to...
    Thread by: Andy, Apr 12, 2019, 3 replies, in forum: General ME/CFS news
  15. JohnTheJack
    Thread

    Appeal to the FTT for information from QMUL rejected

    Decision here. https://www.dropbox.com/s/kc9ezxfk51t1eu5/014%20040419%20Decision.pdf?dl=0
    Thread by: JohnTheJack, Apr 4, 2019, 58 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  16. Tom Kindlon
    Thread

    Response: Sharpe, Goldsmith and Chalder fail to restore confidence in the PACE trial findings

    This open access rejoinder officially came out today. I thought I would highlight it in its own thread....
    Thread by: Tom Kindlon, Mar 26, 2019, 51 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  17. Kalliope
    Thread

    The Canary: The establishment media has launched a vicious "war" on chronically ill people

    Fréa Lockley: The establishment media has launched a vicious "war" on chronically ill people The media has upped the ante on a vicious and...
    Thread by: Kalliope, Mar 19, 2019, 0 replies, in forum: General ME/CFS news
  18. Cheshire
    Thread

    CORRESPONDENCE The PACE trial of treatments for chronic fatigue syndrome: a response to WILSHIRE et al (2019) Sharpe, Goldsmith & Chalder

    Chronic Fatigue Syndrome (CFS) is chronic disabling illness characterized by severe disabling fatigue, typically made worse by exertion. Myalgic...
    Thread by: Cheshire, Mar 15, 2019, 117 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  19. Kalliope
    Thread

    Denmark: Newspaper Politiken on PACE and the Cochrane review - David Tovey interviewed.

    Den syge på Fanø: Skal de kronisk trætte træne? google translation: The patient at Fanø: Should the chronically tired exercise? Please look...
    Thread by: Kalliope, Mar 14, 2019, 19 replies, in forum: General ME/CFS news
  20. Sly Saint
    Thread

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    Reuters: LONDON (Reuters) - The emails, tweets and blog posts in the “abuse” folder that Michael Sharpe keeps on his computer continue to pile up....
    Thread by: Sly Saint, Mar 13, 2019, 866 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
Showing results 41 to 60 of 189
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