nih post-infectious me/cfs study

This thread has been split from the NIH News thread The thread on the paper for the NIH ME/CFS study which is the subject of this symposium is here: Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al Link to the recording of the symposium...

I have been out of the loop for a while so I have not read (and am not currently able to) the two long threads on the forums about the NIH study and the use of the EEFRT questionnaire. Have there been posts in those threads that have attempted to summarize the criticisms made so far, or perhaps...

Copied from Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al I do not get the impression that this part of the study is an honest, illness- and patientinput-driven look into ME; to me it looks an awful lot like an effort to (further)...

This post has been copied and the following posts moved from the main thread on the study: Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al Abstract Post-infectious myalgic encephalomyelitis/chronic fatigue syndrome (PI-ME/CFS) is a...

This post has been copied and many following posts moved from the main thread on the study: Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al Abstract Post-infectious myalgic encephalomyelitis/chronic fatigue syndrome (PI-ME/CFS) is a...

First news: https://www.statnews.com/2024/02/21/nih-study-myalgic-encephalomyelitis-chronic-fatigue-syndrome-news/ Moderator note: Posts on some specific parts of the study are in separate threads, for improved readability: Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024...

Preprint Background A central feature of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is post exertional malaise (PEM), which is an acute worsening of symptoms after a physical, emotional and/or mental exertion. PEM is also a feature of Long COVID. Dynamic measures of PEM have...

Not sure where to post this but it is mainly about ME/CFS https://www.webmd.com/lung/news/20220915/long-covid-preventable-tragedy-some-saw-it-coming

Apologies if there is already a thread on this

Brian Vastag asked me to post this here as he isn’t on Science 4 ME. Hi - I'm nearing the end of week 2, visit 2 of the NIH study. Thought that I'd reiterate to the community that the study is still recruiting and still needs patients. To volunteer, contact patient coordinator Angelique Gavin...