nice guideline

  1. Trish

    January 2025 surveillance of [ME/CFS]: diagnosis and management (NICE guideline NG206)

    https://www.nice.org.uk/guidance/ng206/evidence/january-2025-surveillance-of-myalgic-encephalomyelitis-or-encephalopathychronic-fatigue-syndrome-15251111533?tab=evidence Quoting the whole statement: January 2025 surveillance of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue...
  2. J

    Audiobook: Caroline Kingdon

    https://www.scipod.global/caroline-kingdon-from-stigma-to-support-a-new-approach-to-me-cfs-treatment-in-the-uk/ About this episode Imagine living with an illness that can sap your energy levels so completely that even day-to-day tasks, such as doing laundry, walking the dog, or even getting out...
  3. ahimsa

    #MEAction UK: Questions to Ask Prospective MPs About ME/CFS

    From the #MEAction website: Questions to Ask Prospective MPs About ME/CFS https://www.meaction.net/2024/06/04/questions-to-ask-prospective-mps-about-me-cfs/
  4. SNT Gatchaman

    Management of severe ME/CFS in children and young people in the UK: a British Paediatric Surveillance Unit study, 2024, Royston et al.

    Management of severe ME/CFS in children and young people in the UK: a British Paediatric Surveillance Unit study Alexander Peter Royston; Sarah Burge; Ilaria Idini; Amberly Brigden; Katharine Claire Pike OBJECTIVES Severe myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS) in...
  5. SNT Gatchaman

    NICE guideline on ME/CFS: robust advice based on a thorough review of the evidence, 2024, Barry et al.

    NICE guideline on ME/CFS: robust advice based on a thorough review of the evidence Peter Walter Barry; Kate Kelley; Toni Tan; Ilora Finlay In 2021, the National Institute for Health and Care Excellence produced an evidence-based guideline on the diagnosis and management of myalgic...
  6. MrMagoo

    Do you have a UK NICE care plan?

    Hi I’ve been trying to fill one in (got an excel download which makes it straightforward) although I’m getting a bit disheartened because it’s supposed to be completed by a Dr, and reviewed annually. I think the GP wants the ME clinic to do it, but they’re not going to, because they’re run by...
  7. T

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for chronic fatigue syndrome and myalgic encephalomyelitis Peter White, Susan Abbey, Brian Angus, Harriet A Ball, Dedra S Buchwald, Christine Burness, Alan J Carson, Trudie Chalder, Daniel J Clauw, Jan...
  8. Binkie4

    Implementation of the NICE Guideline [NG206] on [ME/CFS] in England - Freedom of Information Findings Report - Action for ME, May 2023

    Posts have been moved from 3 threads: UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion United Kingdom: Action for ME (AfME) news I don't tweet so please excuse format. This is probably the...
  9. T

    4-page summary of the 2021 NICE ME/CFS guidelines

    A useful 4-page summary of the 2021 NICE ME/CFS guidelines is available here: https://s3-eu-west-2.amazonaws.com/learna.content/studyprn/docs/core-guidance-2023-cpd-handout-v1.pdf It's included in the 'further resources' list on the home page for recently updated free online CPD module on...
  10. P

    Snippets from White P et al. "Eight major errors in the review process and interpretation of the evidence in the NICE guideline [...]" [for ME/CFS]

    White P et al. - Eight major errors in the review process and interpretation of the evidence in the NICE guideline for chronic fatigue syndrome and myalgic encephalomyelitis Snippets were posted on Twitter by a journalist: "The article should appear soon in the Journal of Neurology...
  11. Sly Saint

    Tai Chi increases functional connectivity and decreases chronic fatigue syndrome: A pilot intervention study with machine learning and fMRI analysis

    Abstract Background The latest guidance on chronic fatigue syndrome (CFS) recommends exercise therapy. Tai Chi, an exercise method in traditional Chinese medicine, is reportedly helpful for CFS. However, the mechanism remains unclear. The present longitudinal study aimed to detect the influence...
  12. C

    Long Covid - where is the psychosomatics ?

    Full article translation excepting references reproduced below - Fair use, given the context: https://www-dgpm-de.translate.goog/de/aktuelles/nachrichten/nachricht/long-covid-wo-bleibt-die-psychosomatik/?_x_tr_sl=auto&_x_tr_tl=en&_x_tr_hl=en German Society for Psychosomatic Medicine and Medical...
  13. Sly Saint

    NHS Health at Work website

    In dire need of updating links to 2006 Occupational Aspects of the Management of Chronic Fatigue Syndrome: a National Guideline 2008 Healthcare professionals leaflet 2008 Employers leaflet. https://www.nhshealthatwork.co.uk/chronic-fatigue.asp @adambeyoncelowe
  14. Daisy

    United Kingdom: Suffolk & North East Essex (SNEE) Service Development

    Work is continuing to develop a new M.E. and CFS Service in Suffolk and North East Essex. A survey has been created which is focused on establishing the priorities of patients, taking into account the new NICE Guidelines. Resources will be limited, so we need to establish what is most important...
  15. Sly Saint

    What Primary Care Practitioners Need to Know about the New NICE Guideline for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in Adults 2022

    preprint authors Kingdon, C.C.; Lowe, A.; Shepherd, C.; Nacul, L. Abstract The new NICE guideline for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), published in October 2021, makes significant changes in treatment recommendations. It acknowledges the complexity of this chronic...
  16. Andy

    2022 Brian Hughes on the NICE Guideline and what it means for care of people with ME/CFS

    Copied post Video is now available https://youtu.be/D8ayxBSsk_M
  17. Jonathan Edwards

    Implementation statement in support of ME/CFS diagnosis and management, NICE, draft published for consultation

    Moved from the UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion thread. Dear Jonathan Further to the email sent last week, please find attached the draft implementation statement in support of our guidance on the diagnosis and management of myalgic...
  18. Andy

    #MEAction Scotland News

    https://www.meaction.net/2018/06/29/volunteer-of-the-month-scottish-trio/ Congrats @Emsho :)
  19. Kalliope

    New NICE guideline on chronic fatigue syndrome: more ideology than science? 2022, Flottorp et al

    The Lancet New NICE guideline on chronic fatigue syndrome: more ideology than science? Signe A. Flottorp, Kjetil Brurberg, Per Fink, Hans Knoop, Vegard B B Wyller Article is paywalled other than this text (references removed): The National Institute for Health and Care Excellence (NICE) in the...
  20. Noir

    2022 Petition: Denmark must follow international evidence-based guidelines for ME (anyone can sign)

    The Danish Health Authorities rejects the new NICE guidelines and keep clinging to CBT and GET. Please sign and share this petition to help put pressure on the Danish Health Authorities so they will start following current biomedical science. I've linked both an English translation and the...
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