Post-Covid-19 Symptoms in Children: A Cross-Sectional Survey
Julie Bennett; Mona Jeffreys; Andrew Waa; Jane Zhang; Anna E. S. Brooks; Larisa Hockey; Amanda Kvalsvig; Michael G. Baker
AIM
To assess children's self or parental-rated health following Aotearoa New Zealand's (NZ) first widespread...
https://www.healthpoint.co.nz/private/specialist/dr-kannaiyan-rabindranath/
Nephrologist welcoming referrals for patients with ME/CFS.
I think this is the first specialist in New Zealand I have heard of with an interest in ME/CFS. It's not clear what his approach to ME/CFS is. 'multiple...
Not a recommendation, with a giveaway being the use of "CFS/ME"
https://theconversation.com/success-in-treating-persistent-pain-now-offers-hope-for-those-with-long-covid-232897
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Hamish Wilson
Associate Professor in General Practice, University of Otago
John Douglas Dunbar
Clinical Senior...
https://www.phcc.org.nz/briefing/long-covid-aotearoa-nz-risk-assessment-and-preventive-action-urgently-needed
On the Public Health Communication Centre Aotearoa
Amanda Kvalsvig, Anna E. S. Brooks, John D. Potter, Mona Jeffreys, Julie Bennett, David Davies-Payne, Jonathan Kennedy, Dianne...
This thread is for a list of sub-national Canadian ME/CFS and Long Covid organisations.
National organisations are listed in ME/CFS and Long Covid charities/ organisations - International and National.
MECFS Canterbury - info@mecfscanterbury.nz (Canterbury)
Complex Chronic Illness Support -...
https://www.researchsquare.com/article/rs-3335919/v1
Article
Immune cell proteomes of Long COVID patients have functional changes similar to those in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Katie Peppercorn1
Christina D. Edgar1
Torsten Kleffmann1
Warren. P Tate1
Email
1...
https://www.goodfellowunit.org/medcases/chronic-fatigue-syndromemyalgic-encephalomyelitis
Chronic fatigue syndrome/myalgic encephalomyelitis
Date Published
Monday, 18 September 2023
Category
Chronic conditions
Miss C is a 17-year-old girl who comes to see you ...
The specific treatments that...
New Zealand's COVID-19 elimination strategy and mortality patterns
Stacey Kung; Thomas Hills; Nethmi Kearns; Richard Beasley
No Abstract
Link | PDF (The Lancet)
Posts moved from News from Aotearoa/New Zealand and the Pacific Islands
YouTube - Post-Exertional Malaise in ME/CFS - Management and Supports - Webinar for Health Professionals (24 mins)
Dr Cathy Stephenson for ME Awareness NZ on World ME Day.
I think this is a good resource for GPs and...
People with ME/CFS in Aotearoa have been unable to access Whaikaha-funded support services. I'd like to understand exactly why that is - where is the document or definition that excludes people disabled by ME/CFS from this care?
Ministry of Disabled People (Whaikaha)...
Copied post
Online research launched to help those with Long Covid
"A free comprehensive online tool has been released today to help those suffering from Long Covid.
Chronic fatigue support group, ME Support, said people with Long Covid have been calling for more support and information for...
https://www.dysimmune.nz/
Crowd-Funded Research into Long Covid, ME/CFS & Other Post-Viral Illnesses
Hosted at the University of Auckland
Immunologist Anna Brooks is the Principal Investigator. Other co-founders have lived experience of ME/CFS and Long Covid. With the people involved, I think...
Support Experiences of Children and Youth with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Epilepsy in New Zealand Schools: A Parental Perspective
A thesis presented in partial fulfilment of the requirements for the degree of Master of Science with an Endorsement in Health...
As Medical Advisor to the NZ ME Association (ANZMES) and having worked in this area of medicine for 40 years, I am concerned that recent GP educational events have promoted ‘The Lightning Process’,1,2 predominantly used for treatment of chronic fatigue syndrome/myalgic encephalomyelitis...
Copied post
Petition for NZ govt to recognise ME as a disability.
https://www.parliament.nz/en/pb/petitions/document/PET_125649/petition-of-associated-myalgic-encephalomyelitis-society
https://www.frontiersin.org/articles/10.3389/fneur.2022.877772/full
Hypothesis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a disease now well-documented as having arisen commonly from a viral infection, but also from other external stressors, like exposure to agricultural...
Posts consolidated from a number of threads - apologies if the posts do not completely flow
Covid-19 vaccination experiences
News from Aotearoa/New Zealand and the Pacific Islands
A significant proportion of COVID-19 patients are suffering from prolonged Post-COVID-19 Fatigue Syndrome, with characteristics typically found in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). However, no clear pathophysiological explanation, as yet, has been provided.
A novel...
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