monitoring

Hi all. I’ve made the plunge and invested in an Oura Ring 4. Reason was, I lacked confidence in the HRV readings taken by my Visible App and armband each morning - I wanted to see in more detail what is going on overnight. It’s early days, but I’ve seen some very revealing trends (that I...

https://arxiv.org/pdf/2412.16847 Fatigue Monitoring Using Wearables and AI: Trends, Challenges, and Future Opportunities Kourosh Kakhia, Senthil Kumar Jagatheesaperumalb, Abbas Khosravia, Roohallah Alizadehsani*,a, U Rajendra Acharyac aInstitute for Intelligent Systems Research and Innovation...

Moderator note. This post has been copied and following posts moved from this thread: Possibility of ME or PVFS after Covid-19 Big thanks to @Andy for posting this. I posted similar on Twitter and got very lucky It's amazing and, hopefully, this will lead to serious action by the WHO.

Free: https://dl.acm.org/doi/pdf/10.1145/3643834.3661617 Sarah Homewood, Kari Okholm Just, and Olivia Bramm Johansson. 2024. The Unanticipated Use of Fitness Tracking Technologies During PostCOVID Syndrome. In Designing Interactive Systems Conference (DIS ’24), July 01–05, 2024, IT University...

Posting on behalf of the developer For more information and discussion of the FUNCAP survey itself, see Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al ***** Beta test: FUNCAP app for iPhone If you would like to try the first...

The Bateman Horne Center have a one page guide to using HRV for monitoring in ME/CFS. https://batemanhornecenter.org/wp-content/uploads/2023/05/Heart-Rate-Variability-HRV.pdf It includes what is HRV, How to track HRV and

High-resolution daily profiles of tissue adrenal steroids by portable automated collection https://www.science.org/doi/10.1126/scitranslmed.adg8464 Abstract (paragraphs mine) Rhythms are intrinsic to endocrine systems, and disruption of these hormone oscillations occurs at very early stages...

No info https://www.sciencedirect.com/science/article/abs/pii/S2405500X23000907?via=ihub A research letter: https://www.jacc.org/doi/10.1016/j.jacep.2023.02.002 ****** link to post with open access link Two threads on the topic have been merged

Copied post No idea who is behind this but the idea seems coherent:

Abstract Background Trial monitoring is an important component of good clinical practice to ensure the safety and rights of study participants, confidentiality of personal information, and quality of data. However, the effectiveness of various existing monitoring approaches is unclear...

"Visible tracks your post-viral illness so you can manage your activity, avoid relapse and improve your health." https://makevisible.co/ There's not a lot of detail on the website - it seems to be focused on heart rate monitoring and tracking of symptoms.

I saw this in a SolveME Facebook post: Study Alert: Our friends at...

Introduction Long-term COVID symptoms marked by autonomic dysfunction1 and cardiac damage2 following COVID-19 infection have been noted for up to 6 months after symptom onset,3 but to date have not been quantified, to our knowledge. Previous studies have found that wearable data can improve...

From @PhysiosforME "Participants needed for our study We are delighted to announce that recruitment has now begun for our feasibility study: “Feasibility of investigating oxygen consumption (VO2), heart rate, blood pressure, lactic acid levels and activity levels of people with Myalgic...

Prototype. "Monitoring the effects of daily activities on the physiological responses of the body calls for wearable devices that can simultaneously track metabolic and haemodynamic parameters. Here we describe a non-invasive skin-worn device for the simultaneous monitoring of blood pressure...

Full title: An exploratory study of discrepancies between objective and subjective measurement of the physical activity level in female patients with chronic fatigue syndrome Highlights • There is a discrepancy between self-report and objective activity measures in CFS. • The activity diary...

This is both interesting and slightly worrying. I got a Garmin Vivostyle watch/activity tracker for my birthday last year and it does all sorts of very useful things to help me keep an eye on what’s going on with my poor beleaguered body in an attempt to spot at least some form of pattern to my...

PEM has become a mandatory symptom in many CFS guidelines, so I would expect that there is plenty of data of monitored patients during the malaise/fatigue interval because this is when the disease's mechanism of action is amplified and certain biomarkers should stick out and be clearer. Maybe...

Full title: Validation of the Severity of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome by Other Measures than History: Activity Bracelet, Cardiopulmonary Exercise Testing and a Validated Activity Questionnaire: SF-36 https://www.mdpi.com/2227-9032/8/3/273

I am included this paper as Ron Davis is one on the authors and he has talked about this type of technology in his ME/CFS talks. This is a sweat or saliva sampling system using a custom smart watch to measure drug concentration - in this case acetaminophen (Tylenol). It is a colllaboration...