#meaction uk

paywalled (?) Demonstrators in London’s Parliament Square last week called for hundreds of millions of pounds missing from research into myalgic encephalomyelitis to be restored to the condition. The campaigners, including Alex Chalk and many other MPs, illustrated ME’s connections to other …...

News from #MEAction UK Website: https://www.meaction.net/countries/uk/ Twitter: https://twitter.com/MEActNetUK

https://www.meaction.net/2020/07/15/take-action-graded-exercise-harming-people-with-me-and-covid-long-haulers/

#MEAction UK and #MEAction Scotland have created a film for #MillionsMissing this year. Really grateful to be able to include expert testimony from Professor Chris Ponting and Dr Nina Muirhead, and for the many video submissions from people with ME. It was both fun, challenging and deeply...

https://www.meaction.net/2020/03/04/invite-your-doctor-to-learn-about-me-medical-education-event-in-london/

#MEAction UK has a new project called "Take ME Seriously" Update: Anyone can join in this advocacy action. It is not just for UK residents. They are collecting comments and signatures regarding the NICE (National Institute for Health and Care Excellence) ME/CFS treatment guidelines in the UK...

Moderator note: Copied from thread here https://www.s4me.info/threads/uk-stop-graded-exercise-therapy-for-me-cfs.1301/#post-195995 https://www.meaction.net/2019/08/27/nice-drag-their-feet-on-stopping-the-harm-caused-by-get-and-cbt/

https://www.meaction.net/2018/12/19/join-our-meaction-uk-meaction-scotland-social-media-teams Application form here (I volunteer with #MEAction, so am a little biased, but you'd be joining a really lovely team)

https://www.meaction.net/2018/10/11/meet-with-your-mp-about-me-toolkit/

Don't think this has been posted yet? https://www.meaction.net/2018/08/02/meaction-uk-activist-speaks-at-the-international-deaf-disabled-peoples-solidarity-summit/

just received this email We have some exciting news to share. Thanks to everyone’s hard work and efforts, we are able to expand our team! We haven’t fully funded the UK position (if you want to help us get to our goal, go here), but there is too much happening to wait! We will be hiring a UK...

#ME Action Network have just announced a fundraiser for a U.K. organiser. “to support another year of mass awareness, medical and scientific outreach, advocacy, and community for impact like #MillionsMissing and our parliamentary actions” Edit: Link will be added when can work out how to do...