m.e.

  1. C

    NHS England now lists ME (not CFS) under neurological conditions but puts it in potentially unhelpful category

    https://www.england.nhs.uk/ourwork/clinical-policy/ltc/our-work-on-long-term-conditions/neurological/ I’m not sure if others will be pleased or exasperated. I’m bedridden 24/7 and identify with advanced , chronic, incapacitating neurological illness in terms of impact. My M.E. is neither...
  2. Sly Saint

    Article: My illness makes me feel like I've run a marathon after two bottles of wine - Dec 2019

    https://www.examinerlive.co.uk/news/west-yorkshire-news/picture-hides-illness-can-make-17432787 I feel sorry for the author
  3. Sly Saint

    ‘Winter Hill’ Film Premiere in ME Awareness Week May 2019

    from MEA website https://www.meassociation.org.uk/2019/05/me-awareness-winter-hill-film-premiere-in-me-awareness-week-03-may-2019/ on youtube
  4. Sly Saint

    Mum reveals how daughter went from active 11-year-old to a recluse after being diagnosed with ME

    " 1st May 18 Libby is one of the youngest people in the UK to develop the chronic fatigure condition. A mum has spoken out about her 11-year-old daughter’s heartbreaking loneliness, after chronic fatigue condition ME transformed her from a sport-loving livewire into a virtual recluse. One of...
  5. Sly Saint

    Living with ME in Denmark - interviews with Rebecca Hansen and Kamilla Thomsen

    This came up on the Mikes EU marathons thread. " DENMARK I spoke to Rebecca Hansen from the Danish ME Association ME Foreningen and severe ME patient Kamilla Thomsen. Here's what they told me about living with ME in Denmark. Rebecca Hansen Can you give us an overview of what life is like...
  6. Forbin

    Entire issue of Post Graduate Medical Journal (11/1978) devoted to ME

    I'm not sure that I've seen this linked elsewhere, but the entire November 1978 issue of the Post Graduate Medical Journal was devoted to ME and is online. It includes articles by Melvin Ramsay and J. Gordon Parish among others. I thought it might be of historical interest to some. Here, ME is...
  7. Sly Saint

    BBC File on 4 programme 'Children with ME'

    From earlier this year Matthew Hill reports for BBC's File on Four program "Children with ME"; Parents of children diagnosed with Myalgic Encephalomyelitis (ME) reveal how they have been investigated and referred for child protection measures on suspicion of a rare form of child abuse known as...
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