management

Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic neurologic disease often preceded by infection. There has been increased interest in ME/CFS recently because of its significant overlap with the post-COVID syndrome (long COVID or post-acute sequelae of COVID)...

Abstract Most of the people who suffered from COVID-19 fully recovered, but approximately 10–20% of them developed a wide variety of symptoms after they recover from their initial illness. Long COVID can develop at any patient; however, several studies suggest that the development of Long Covid...

Abstract Post-COVID-19 syndrome is a new condition that can have a major impact on the physical and mental well-being of children and young people, affecting their ability to access activities including education. Paediatricians and general practitioners need to be able to assess and manage...

Full title: Cognition and Postural Tachycardia Syndrome (POTS): Participant-Identified Challenges and Strategies, and Implications for Intervention Abstract Postural Orthostatic Tachycardia Syndrome (POTS) is a condition that affects the autonomic nervous system and can cause both orthostatic...

Published today in the Mayo Clinic Proceedings: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Essentials of Diagnosis and Management Lucinda Bateman, MD, Alison C. Bested, MD, Hector F. Bonilla, MD, Bela V. Chheda, MD, Lily Chu, MD, MSHS, Jennifer M. Curtin, MD, Tania T. Dempsey, MD...

Abstract Globally, there are now over 160 million confirmed cases of COVID-19 and more than 3 million deaths. While the majority of infected individuals recover, a significant proportion continue to experience symptoms and complications after their acute illness. Patients with ‘long COVID’...

Video: Fatigue, Pacing and PEM Management | Lessons from ME/CFS - With Dr Ben Marsh I know this video has been mentioned on another thread but I think it might have been missed by many and deserves a thread of its own. In Episode 3 of our expert interviews series, Dr Asad Khan talks to Dr Ben...

Journal of Orthopaedic & Sports Physical Therapy Editorial Humility and Acceptance: Working Within Our Limits With Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Simon Décary, PT, PhD et al Abstract Synopsis The term long COVID was coined by patients to describe the...

https://www.meaction.net/wp-content/uploads/2020/10/Pacing-and-Management-Guide-for-ME_CFS-8.pdf

https://www.bmj.com/content/370/bmj.m3026

Free full text: https://journals.sagepub.com/doi/full/10.1177/0308022620904327 Energy management education and occupation-related outcomes in adults with chronic diseases: A scoping review 5 of the 44 studies were CFS studies

https://www.meassociation.org.uk/2020/02/new-mea-guide-me-cfs-the-ten-key-aspects-of-management-05-february-2020/?fbclid=IwAR3R0s1AF3v1ZqGutZFVipo1YGEqHCgsBqnrlSCKiELowPvN5CTP8K34Wz0

Open access, https://onlinelibrary.wiley.com/doi/full/10.1111/apa.15054

Have been going thro this. http://www.bcwomens.ca/health-professionals/professional-resources/complex-chronic-diseases Clinical Protocol http://www.bcwomens.ca/Specialized-Services-Site/Documents/Complex%20Chronic%20Diseases%20%28CCDP%29/Clinical%20Protocol-ME-CFS.pdf

Open access at https://journals.sagepub.com/doi/10.1177/1367493519864747

I have been thinking a lot about the evidence base for ME/CFS management. There are some good negative studies but a positive evidence base is hard to find, as we know. At the NICE scoping meetings there was a consensus that what could be justified in the current situation was more ongoing...

https://www.rcplondon.ac.uk/ngc-guideline-development

https://blogs.bmj.com/bmj/2019/02/08/hilde-t-myrhaug-and-tone-hansen-co-producing-a-systematic-review-with-patients/ I thought that this was of interest for showing how patients can end up pushing for a more 'positive' presentation of results if they've had a positive experience with a...

I’ve been reading this 2013 study by Friedberg et al. Chronic fatigue self-management in primary care: a randomized trial. This isn’t a study of ME/CFS, but the paper claims that 39% of the 111 randomized participants did meet diagnostic criteria for CFS (Fukuda-criteria). I don’t think the...

Australian government tender for clinical pathway development for tick related diseases https://www.tenders.gov.au/?event=public.atm.show&ATMUUID=04A87C7D-0E3F-EB19-7ABD47FD0E8FA550&fbclid=IwAR0BJ6W5-LXFY8tz0XySjVsJFHKoPE8ueJ1N8Ct24FhvXVgj9JO6sqJnjKs