BMJ Management of post-acute Covid-19 in primary care, 2020, Greenhalgh et al

Discussion in 'Long Covid research' started by obeat, Aug 12, 2020.

  1. obeat

    obeat Senior Member (Voting Rights)

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  2. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Fatigue
    The profound and prolonged nature of fatigue in some post-acute covid-19 patients shares features with chronic fatigue syndrome described after other serious infections including SARS, MERS, and community acquired pneumonia.19202244 We found no published research evidence on the efficacy of either pharmacological or non-pharmacological interventions on fatigue after covid-19. Patient resources on fatigue management45 and guidance for clinicians on return to exercise43 and graded return to performance for athletes (box 4) 46 in covid-19 are currently all based on indirect evidence.
     
  3. Kalliope

    Kalliope Senior Member (Voting Rights)

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    I like that they recommend pacing and emphasise that graded increase of exercise should be done only if tolerated. Also nice to see recommendations of patient peer support groups.

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  4. Amw66

    Amw66 Senior Member (Voting Rights)

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    Alternative universe
     
  5. Ravn

    Ravn Senior Member (Voting Rights)

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    Patients were involved in reviewing this prior to publication. One of them was Paul Garner - I don't recognise any of the other names - he may well be reponsible for the bolding of "if tolerated".
     
  6. Sean

    Sean Moderator Staff Member

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    That is a critical qualifier. It makes it symptom driven, which is pacing not GET.
     
  7. Hoopoe

    Hoopoe Senior Member (Voting Rights)

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    This needed an explanation of PEM.

    Without it, there is the risk of symptoms being attributred to deconditioning when they have nothing to do with it.
     
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  8. NelliePledge

    NelliePledge Moderator Staff Member

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    Agreed but it’s not a bad start and hopefully they could be persuaded to revise it with information about PEM as patients begin to register that the time frame for any anticipated recovery is stretching and get a better understanding of what PEM is and how it affects them in practice.
     
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  9. Arnie Pye

    Arnie Pye Senior Member (Voting Rights)

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    I don't understand this. How can someone whose covid-19 was managed in the community have a persistent abnormal chest x-ray if the same article recommends chest x-ray only at 12 weeks?

    And "subsequent early referral to pulmonary rehabilitation probably aids recovery"? Obviously my definition of the word "early" is substantially different to that of the author.
     
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  10. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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  11. Kitty

    Kitty Senior Member (Voting Rights)

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    I'm really hoping this is the final death knell for GET. I know it's not a NICE publication, but it's from an influential journal; it's quite hard to see how NICE could continue recommending exercise-based 'therapy' in the face of publications like this.
     
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  12. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

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    Though this group have real problems understanding that association is not causality and invariably decide on a direction of causality that suits their own preconceptions regardless of other evidence.
     
  13. MEMarge

    MEMarge Senior Member (Voting Rights)

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    Are there other disease/illness groups where the main clinician/researchers are so negative about peer-support groups and relevant charities?
     
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  14. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    Good question.

    Their frequent references, in the past, to highly organised and "politicised" patient organisations that operate as "powerful lobby groups" used to amuse me.
     
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  15. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    Indeed.
     
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  16. chrisb

    chrisb Senior Member (Voting Rights)

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    Be fair, one at least was quite powerful in terms of carrying the message to the patients.
     
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  17. Adrian

    Adrian Administrator Staff Member

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  18. Denise

    Denise Senior Member (Voting Rights)

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    I am glad they are listening to those who know (patient peer reviewers) what they're talking about!
     
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  19. Adrian

    Adrian Administrator Staff Member

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    A shame they needed to but yes.
     
  20. Denise

    Denise Senior Member (Voting Rights)

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    I am surprised there's not more discussion about dysautonomia in long-COVID. (Haven't tracked this so is this generally the case or is there acknowledgement of it?)
     

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