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Living with ME | Wellcome Collection Portraits and interviews by Jeremy Jeffs real photos of real pwME

Just wanted to recommend this Instagram profile with excellent and professionally made illustrations in both Norwegian and English versions. Description of profile: Illustrating the debate, science and politics about ME to raise awareness. https://www.instagram.com/illustrating_me/

Hi All, Thank-you to those who completed a trial survey regarding images portraying ME in the media. Following yesterday's feedback, we have made significant improvements. The 'final version' of the survey is here: https://www.surveymonkey.com/r/APictureOf_ME I would be very grateful if people...

physio-pedia pretty awful entry under chronic fatigue syndrome. the good news is it says that it is currently under review. https://www.physio-pedia.com/Chronic_Fatigue_Syndrome

We need your opinion on this pool of photos: > Proposed collection of ME/CFS images for use by the media < A group of forum members suggested and selected (here) the photos - as a resource for people who choose the images for stories in the media about ME. Everyone is fed up with the media...

August 2021 DOI:10.13140/RG.2.2.30505.72806 Conference: 2021 IACFS/ME Virtual Conference Authors Penelope McMillan, Penelope Del Fante, Geoffrey Hallmann, Jade Barclay Abstract Background: ME/CFS is a stigmatised, often misunderstood condition. This situation is compounded by minimal...

UNDEREXPOSED within four walls of severe m.e photography exhibit trailer https://www.youtube.com/watch?v=dT53W0GWQIg

[Parts one and two are more personal tales of the author's experiences, part three, linked below, delves into the history of ME and CFS and relates history to what is happening today.] "It has been almost eight years since I caught a virus and never recovered, and I completely empathise with...

For people who have no idea what ME is like, (for example most doctors and healthcare workers) how would you express it briefly? You could use: words/phrases, maybe a word cloud. quotes or facts drawings/pictures The space is small and rectangular. All ideas and links are welcome. You do...

I've had ME for 25 years. For the last 5 years, I'v been drawing cartoons about the people, issues and events associated with ME. I just finished my 18th cartoon. Some of the cartoons have appeared from time to time on this website. If you would like to see all of the cartoons, they are...

Anil van der Zee started this: People could also do it on other social media platforms such as Facebook and Instagram. People can also make posts here if they wanted. Lots and lots of people have responded under Anil's post

MEA: Real People. Real Illness. ME Awareness Month 2020. ME/CFS affects the lives of over 265,000 people in the UK alone. The ME Association put together this video, with the help of real people with ME, to show the different types of people suffering with ME.

https://hubs.ly/H0lhw1C0 given that using the media to change perceptions about our illness has been the focus of quite a lot of campaigning, i was wondering whether this Could be used by our community? How to submit: https://hubs.ly/H0lhw1C0

Hi! This has been around for awhile yet I forgot about it til recently when I was looking for something simpler to send someone who kept commenting on how well I looked. I had given them a few examples how PEM in ME/CFS works (that I thought a person without ME would get) yet from their other...

Merged thread: 'Stock photos are terrible at depicting illness' http://www.slate.com/articles/health_and_science/medical_examiner/2017/11/stock_photos_are_terrible_at_depicting_mental_and_physical_illness.html They are particularly deplorable for ME... More threads on this topic Psychosocial...

Big congrats to photographer Beatrice Lundborg who won second prize in the category "Culture & Entertainment" in the Swedish competition Photo of the Year :) Here's a Google translation of the caption: Full story (in Swedish) and an absolutely gorgeous full-size, high-quality version of the...

(mods: if this is the wrong forum please move it. wasn't sure where it belongs.) Stumbled on this artist and thought some of Avogado6's illustrations would be so helpful in media coverage in place of the usual limp female holding her head...

https://www.nrshealthcare.co.uk/articles/condition/chronic-fatigue-syndrome