There are an estimated 250,000 PwME in the UK, not counting the influx from Covid, and yet only about 20,000 joined DecodeME (a low-effort, patient-friendly, crucial study), our two main charities probably have a total of about only about 10,000 members/supporters (the MEA has 5,000 so I'm...
See Also: Which ME/CFS charity would you donate to right now for biomedical research?
And: What are the best UK charities for ME?
Following my receipt of a 50 USD charity gift card in a giveaway which only works with US Charities, I am left wondering what charity to spend it on. In the list of...
I’ve noticed some (especially US based) charities have fundraising times when they say your donations will be matched (2x, 3x etc.) such as the OMF and MEAction.
I wonder a couple things about this:
1) Who is matching these donations?
2) If it says “matching upto 50k” and only 10k is donated...
Daniel Missailidis, PhD on X:
Did you know that you can donate directly to our ME/CFS research labs at La Trobe University?
Every dollar supports the costs of our research directly and literally buys us more time to continue studying the cell biology of ME/CFS.
#research #MECFS...
From a Solve ME email (https://go.solvecfs.org/webmail/192652/244768601/8421fba22dceaa57b85acf39456eef77182e5a5b928514a03a2c9a7fa8ca8530)
Webinar for Researchers “CDMRP for ME/CFS: Navigating the Grant Application Process”, 21st April 2022
The FY22 Defense Appropriation provides funding to...
Fundraiser for a movie trailer to be leveraged into funding for a documentary.
I've no connection to this. All I know is what's at the link.
https://www.indiegogo.com/projects/help-get-documentary-movie-about-m-e-made#/
More than 25 musicians from around the country will come together Friday, Jan. 7, 2022 to present "A Love Song for Hal," a live-streamed benefit concert that will raise money to support beloved Ohio musician, Hal Walker, in his battle with myalgic encephalomyelitis/chronic fatigue syndrome...
A fundraiser has been set up in memory of Graham, our much loved member who passed away recently. See this members only thread.
The fundraiser was set up by Graham's family. (edited to clarify this)
The chosen charities are the ME Association, Invest in ME Research, and ME Research UK...
''I'm Sally Callow, Founder of ME Foggy Dog, a social enterprise based in the UK. As an advocate, I have noticed that increasingly over recent years, the M.E/C.F.S patient community has been frustrated at the perceived lack of legal action from M.E/C.F.S charities in relation to political...
If your're a gamer and want to support Open Medicine Foundation, I've set up a charity donation campaign team at streamlabscharity.com called Gamers for M.E. 100% of the donations goes to Open Medicine Foundation.
You'll find the campaign here...
I'm currently supporting Invest In ME on Amazon Smile. Do you think this is the best ME research charity to support, or is there a better one I should switch to?
ME Research UK is the only other option I think, as OMF doesn't seem to be available for me as a UK Smile member.
For those who...
2020 Christmas Appeal
'Call in the cavalry! Help us get out the correct news about graded exercise and CBT'
https://meassociation.org.uk/2020/12/its-giving-tuesday-welcome-to-the-start-of-our-big-give-christmas-challenge/
This 'big giving' part of the appeal is live 1st - 8th December.
The...
"
A new charity anthology, featuring stories about John Hurt’s incarnation of the Doctor, is available to buy now.
Regenerations initially finds the Doctor during the Time War, the legendary battle between the Time Lords and the Daleks, but then further explores the Doctor’s previous lives."
"...
I donate a monthly sum to the national ME Association and/or their research fund. Every now and then I additionally support other fundraising schemes that I deem worthwhile.
Until recently my monthly donations have been modest and I have felt it was necessary to direct them towards either...
Rosario Montero and I would like to thank Solve ME/CFS Initiative for trusting our project and funding it. Also to Dr. Bruno Paiva and his CIMA team for carrying it out. And what to say about all those patients and relatives who have donated to the study. Without them this would not be possible...
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