emec

Big article on ME/CFS in the influential German magazine Der Spiegel. It tells the story of Milena Hermisson a young patient and advocate with very severe ME/CFS. Her family has played an important role in the European ME Coalition (EMEC). Man kann sein Leben verlieren, ohne zu sterben...

The European ME Coalition (EMEC) presents three new fact sheets about ME/CFS. We hope these will help to inform politicians and key policymakers about the need for biomedical research on ME/CFS in Europe. The documents briefly summarize key facts about the economic and societal impact of...

What is the Conference on the Future of Europe? The Conference on the Future of Europe is a unique and timely opportunity for European citizens to debate on Europe’s challenges and priorities. No matter where you are from or what you do, this is the place to think about what future you want for...

Link to the article https://www.europarl.europa.eu/news/en/press-room/20200615IPR81245/me-cfs-meps-call-for-more-funds-for-research-into-complex-illness

Press Release from the European ME coalition (EMEC): 'Scientists call for more European research on ME/CFS' Brussels, 10 June 2020 More than one hundred scientists have signed an open letter calling for more European research into the illness Myalgic Encephalomyelitis/Chronic Fatigue Syndrome...

The advocacy group of Evelien Van Den Brink and Francis Martin (of which I’m part) now has an official name and website. Check it out here: https://europeanmecoalition.wordpress.com/ For those who might not remember, this is the group that has submitted the successful European petition for...

A friend on mine (Evelien) has succeeded in getting a petition on ME accepted by the EU Parliament [link below*]. The petition highlights the impact of ME on 2 million people in the EU and the lack of EU funding for ME Research. I'd be grateful if you would consider supporting it (and ask...