Medication Use and Symptomology in North American Women with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2025, A Pochakom, G Macnevin, RF Madden, AC Moss, JM Martin, S Lalonde-Bester, J Parnell…
Background: There are no known curative treatments for myalgic encephalomyelitis/chronic...
Background: Postural Orthostatic Tachycardia Syndrome (POTS) is a complex form of dysautonomia that presents with abnormal autonomic reflexes upon standing, leading to symptoms such as lightheadedness, tachycardia, fatigue, and cognitive impairment. The COVID-19 pandemic has brought renewed...
Long article
Clare Sansom is a science writer based in Cambridge, UK
https://www.chemistryworld.com/features/battling-long-covid-with-drugs/4018238.article
The RECOVER Initiative is doing a trial on Paxlovid for long Covid. Here's the listing on ClinicalTrials.gov:
SARS CoV-2 Viral Persistence Study (PASC) - Study of Long COVID-19 (PASC)
Highlights:
Double-blind multi-center trial in the US
1700 participants
They'll take the drug for 15 days...
Change.org petition to fund and expedite BC-007 research
BC007 NOW- Chance of a cure for millions of suffering people
From the English description
call on the German government to financially support the approval studies of the company Berlin Cures GmbH for the drug BC 007 and to remove...
TLDR: considering taking an antiviral taken routinely as PrEP, what do you think about tenofovir for ME, particularly its safety profile?
I am considering trying the antiretroviral drug Tenofovir. In the UK they would never prescribe this for ME of course, but you can also get the drug without...
A drug company called Ashvattha Therapeutics is working on a new drug candidate for long Covid, OP-101.
Link: Ashvattha previews plans for long Covid trial in mid-2023
Key takeaways:
OP-101 was originally developed for neurodegenerative disease
They're discussing their plans with the FDA so...
Full title: Neutralization of Autoantibodies Targeting G-Protein Coupled Receptors Improves Capillary Impairment and Fatigue Symptoms after COVID-19 Infection
Abstract
Clinical features of Corona Virus Disease 2019 (COVID-19) are caused by the severe acute respiratory syndrome coronavirus-2...
With EMEC we are trying to set up a meeting with representatives of The European Federation of Pharmaceutical Industries and Associations (EFPIA). We are compiling a list of drugs that seem most promising for the treatment of ME/CFS and the pharmaceutical companies that make them.
An example...
The US Food and Drug Administration (FDA) has approved efgartigimod (Vyvgart, argenx), a first-in-class, targeted therapy for adults with generalized myasthenia gravis (gMG) who test positive for the antiacetylcholine receptor (AChR) antibody...
Full text at...
"This guideline covers how to make shared decision making part of everyday care in all healthcare settings. It promotes ways for healthcare professionals and people using services to work together to make decisions about treatment and care. It includes recommendations on training, communicating...
A meta-analysis review worth reading, giving pause to how truly (in)effective many common FDA approved are compared to placebo.
How effective are common medications: a perspective based on meta-analyses of major drugs. Leucht et al. BMC Medicine (2015)
Abstract
The vastness of clinical data...
https://www.nytimes.com/2021/05/28/opinion/alzheimer-treatment-FDA-aducanumab.html?action=click&module=Opinion&pgtype=Homepage
They’ve spent billions on Alzheimer’s and sounds like they still have nothing. Worth reading even though it’s not about MECFS.
Full title:
Reduced endothelial function in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome - results from open-label cyclophosphamide intervention study
Provisionally accepted
https://www.frontiersin.org/articles/10.3389/fmed.2021.642710/abstract
Link : https://www.bbc.co.uk/news/health-51378510
Article continues at : https://www.bbc.co.uk/news/health-51378510
I don't believe that painkillers are as useless as we are being told they are, although I accept that it is essential to find the right one for the patient for them to work as...
This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
By continuing to use this site, you are consenting to our use of cookies.