discussion thread

The Perrin technique is discussed here: Perrin Technique ***** I came across this article this morning. The link was from a canine massage therapist, but the article is about human massage. Apparently, it is a myth that massage disperses lactic acid from muscles after exercise, and that in...

Posts have been copied from this thread about a study that used the MFI. The intro to the linked MFI questionnaire says Does anyone know what validation study they refer to? Because, applied to ME, some of the MFI questions are extremely open to different interpretations. Not to mention...

Disclaimer: I don't have sound or light sensitivity but I have synesthesia. (Senses are weirdly connected in the brain: when music plays I automatically "see" it in my mind - movement, shapes, colours. I also "see" numbers and letters in colour - in my head it is a fact that 1 is white, a b is...

It seems like, another season, and another hyped ME/CFS/Long Covid treatment appears. The first day of Autumn in Australia and I've become aware of Stellate Ganglion Block Treatment. Bye-Bye Fight or Flight? Hello Better Blood Flows? Stellate Ganglion Blocks, Long COVID, and ME/CFS/FM/POTS...

Moved posts Have found this article suggesting vaccination may not reduce the risk of Long Covid, but as always it is not clear how much reliance to place on a newspaper article, especially one with a potentially misleading headline, see No evidence vaccine reduces risk of Long Covid, says...

I'm interested to know how your ME has progressed in severity levels over all the years you have been sick. For easier reading can you write first the amount of years sick with ME, how long each stage and severity level. Thanks. For me: 26 years sick. Progression: Mild with severe cognitive...

Hi all, not sure if this is the best place for this post.. Our 8 year old daughter is currently really struggling with the fact that I am ill, which is utterly heartbreaking. I was wondering if anyone had come across any resources for kids to help them come to terms with a parent who is ill? I...

https://www.haaretz.com/israel-news/the-new-frontier-israeli-hopsitals-contend-with-long-covid-in-children-1.10280661 Has anything similar been reported in ME/CFS?

Moved from Six-month sequelae of post-vaccination SARS-CoV-2 infection: a retrospective cohort study of 10,024 breakthrough infections, 2021, Taquet et al @Hutan thank you, I believe it's all coming together and Long Covid will have been instrumental. The Pretorius micro-clot finding is...

My muscle strength declines rapidly after a certain time walking and then takes a while to come back. It also likes to decline shortly after stopping the activity (usually walking), as if the body was waiting for an opportunity to start resting. The recovery time seems unusually long. I also...

Posts moved from Exploring the scope of homoeopathy in combating the unfortunate consequences of post-COVID-19 survivors based on non-COVID conditions, 2021, Dixit After twelve or so years struggling with ME and trying to stay on top of my working life, I was pleased to see the arrival of a...

Posts moved from Open Medicine Foundation (OMF) Could be interesting to check.

Moved from the OMF news thread. I just watched this talk: Progress and challenges for a ME/CFS diagnosis - By Prof Ron Davis and Janet Dafoe to Sheffield ME & Fibromyalgia Group on Oct 12, 2021 At the end of it Ron Davis made the following statement in reference to spinal issues in ME/CFS...

Interesting blog on brain fog It doesn't mention ME, but we follow each other on Twitter and he included ME in his research. https://real-psychiatry.blogspot.com/2021/03/brain-fog.html?spref=tw

For the last few days, I've been ending up in bed in the afternoons, unable to get warm, exhausted and feeling chills. I guess it's PEM, although it seems to just last a few hours and doesn't involve the body crushed pain that is my experience of full-on PEM. Chills are a frequent feature of...

Early in the summer I had a synthetic corticosteroid injection (Kenalog: Triamcinolone acetonide) for joint pain. To my surprise, I no longer experience the same lymph node pain and flu-like feeling on exertion. As a result I have an increased capacity for activity. It's been several months now...

(Note - this post was actually made on 4 Jul 2022) Note from the moderation team: This thread is for posts about ME/CFS services in the United Kingdom generally. If you have comments about specific services, please post on the relevant service thread (listed below or make a new thread). We...

Copied post, with following posts moved from Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian I'd say that the recent events with NICE has given me zero confidence the same won't happen again here. Cochrane already...

This post has been copied and following posts moved from this thread: NICE pauses publication of updated ME/CFS guideline hours before publication was due - 17th August 2021 I'm still unsure whether this is a parody, but it appears not. This is the kind of thing that is at stake with the...

Preprint: Breakthrough Symptomatic COVID-19 Infections Leading to Long Covid: Report from Long Covid Facebook Group Poll, 2021, Massey et al Abstract Vaccines have been shown to be extremely effective in preventing COVID-19 hospitalizations and deaths. However, a question remains whether...