data-sharing

Abstract Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating disease which involves multiple body systems (e.g., immune, nervous, digestive, circulatory) and research domains (e.g., immunology, metabolomics, the gut microbiome, genomics, neurology). Despite...

I'm not sure how widely known this initiative is, but NHS Digital is planning to scrape enormous quantities of data from UK patient records to share with third parties (it's not clear who these are, but they could well be insurance providers and other commercial interests). The data will be...

https://www.nature.com/articles/s41562-019-0560-3#Sec6

Is anyone who uses Facebook aware this was even being considered? I bet you weren't! Link for rest of article : http://www.bbc.co.uk/news/technology-43668607 Once Fb has managed to sweep its privacy issues under the carpet I'm sure they will get right back to this idea.

Explores the effectiveness of data sharing in two journals. http://www.bmj.com/content/360/bmj.k400 Relevant as J Coyne has not received data from: Adaptive Pacing, Cognitive Behaviour Therapy, Graded Exercise, and Specialist Medical Care for Chronic Fatigue Syndrome: A Cost-Effectiveness...