citizen science

  1. Kalliope

    Long COVID: major findings, mechanisms and recommendations, 2023, Davis, Topol et al

    Nature reviews microbiology Long COVID: major findings, mechanisms and recommendations Abstract Long COVID is an often debilitating illness that occurs in at least 10% of severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infections. More than 200 symptoms have been identified with...
  2. Wyva

    Long COVID Citizen Scientists: Developing a Needs-Based Research Agenda by Persons Affected by Long COVID, 2022, Ziegler et al

    Abstract Background Long-term health consequences following acute SARS-CoV-2 infection, referred to as post-COVID-19 condition or Long COVID, are increasing, with population-based prevalence estimates for adults at around 20%. Persons affected by Long COVID report various health problems, yet...
  3. Andy

    Video: Solve ME/CFS Initiative: Fireside Zoom Chat with Citizen Scientist, Marian Lemle & ME/CFS Researcher, Bindu Paul MSc, PhD.

    https://youtu.be/_QqjvWrflmw
  4. Subtropical Island

    Easy ways to donate time

    I’m always looking for purpose in my life. For me that’s a way to contribute. My ability is very fluctuating. Sometimes I can do a lot and think through complex ideas, physical work etc but others I can barely think through how to do a routine task and certainly can’t leave home, or even bed...
  5. Sly Saint

    The People’s Trial: your chance to be a scientist in a fun online trial - 6 Aug 2019

    full details here https://www.evidentlycochrane.net/peoples-trial-fun-online-trial/ see also: https://thepeoplestrial.ie/about-us/ any way we can use this?
  6. Simbindi

    England, Bristol: Using and understanding research evidence workshop

    This is an opportunity for members of the public to attend a free workshop: 'The workshop will give you an introduction to research and the tools and skills needed to find research evidence relating to health and assess its reliability.'...
  7. Andy

    No PhDs needed: how citizen science is transforming research

    https://www.nature.com/articles/d41586-018-07106-5
  8. Andy

    How to (seriously) read a scientific paper

    https://www.sciencemag.org/careers/2016/03/how-seriously-read-scientific-paper
  9. Sly Saint

    Assessing Randomised Controlled Trials

    There are a number of tools available for journals to use to help assess RCTs. I wondered if anyone here had 'tried them out' for PACE and/or any of the other 'RCT's by Crawley or Chalder? I've seen CASP mentioned...
  10. T

    "Yoga, Depression, & Clinical Trial Critique 101" by Hilda Bastian

    Yoga, Depression, & Clinical Trial Critique 101 Posted August 12, 2018 by Hilda Bastian in Evidence, Health http://blogs.plos.org/absolutely-maybe/2018/08/12/yoga-depression-clinical-trial-critique-101/ Not specifically about ME, but I thought it might be of interest to some people who are...
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